Peg, You really got hit with a triple dose of bad news. My sympathies for your losses. Just keep hanging in there, and live the life that you want to live! My...
Hi HCL Survivers Been in remissions seven years, interluken receptor tests, indicate my hairy cells are gathering strength, 4K, at last test, white blood cell...
Hello everyone, I hope the holidays are treating you well. I am writing on behalf of my mom, who has Hairy Cell and has been treated twice now with Cladribine....
Hi I live in New York and have a great team of Doctors and they are experts on HCL They saved my life in July 2005 Like most people who get HCL I had no idea...
Hi Monica, In 1996 I had HCL, very weak and I needed several bloodtrransfusions, and the treatment for HCL was Cladribine. I did start to feel better after a...
December 27 2007 I went for blood test for my two year mark My bloodwork was perfect totally perfect The only problem was I still have not taken off the 25lb I...
Glad to hear you are doing good it is great to be alive isn t it when I was diagnosed I was living American on a military base in Korea Was treated at...
Hi Monica, I am a 43 year old woman who was diagnosed with Hairy Cell Leukemia in December of 2006. I first had 2CDA for one week 24/7. In March I had relapsed...
Hi Monica, My Dad was originally diagnosed with HCL in 1997, has been treated twice and has had long healthy remissions with very few side effects from each...
If you go on any Hcl webpage you should be able to check out the doctors Anyone in the Seoul Korea area needin teatment or a dianose should see Dr Jung and...
Hi Monica, 4 years ago I was treated with 2CDA at University of Pennsylvania. My doctor's name is Stephen Schuster. He's a wonderful, encouraging doctor. I...
Hapy New Year and may you be blessed with great help and well being this year kingsplayer@... wrote: Hi Monica, 4 years ago I was treated with 2CDA at...
Dear All, Happy New Year! Please excuse my delay in replying. I have been reading all of your recommendations carefully and have been making a number of phone...
Glad to hear your Mom is doing better Miracles happen every day Wish I could have been more help Her nutrtion rest and staying clear of people who have a...
Perhaps it was there before but I never noticed, but after HCL, I have a delay in my brain wiring. ie. I was in a parking lot getting out of my car and some...
If you were a woman I would attribute it to menapause Exercise your brain daily with puzzles cross words challnge your self to remember peoples names and...
I was treated in August 2008 for HCL. By the end of the year, my white cell count was above 4,000. Yesterday (3/11/09), my cell count was in the 3,000...
Hi John If you want please give me a call (516)-495-4732 John Georgiano MAIN (516)-495-4732 CELL (516)815-4067 FAX (516)706-3160 ... From: John McKellar...
John, I was treated in July 1995, since then my WBC have flutuated from a low of 2500 to a high of 5600, but i still feel fine and consider myself in a long...
My husband is the one who was treated. He is at work so I am writing. For him it is not his white blood cells but his platletts (sp?) they have always stayed...
I have the same with the low platelets, Mine have been below normal for most of the past 14 years, the only problem I have is a little trouble stopping ...
I have trouble bleeding My counts were normal went to have blood tessted hada hard time grtting me to bleed In remission 3 years Diagnossed 12 30 05 ... From:...
Hi John, This Yahoo group is not very active. Most HCLers use this group:- http://www.network54.com/Forum/263810/ I hope this helps. Personally I would not...
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