Good Morning Michele, First, Thanks for your e-mail. We definitely understand how you feel, and the need to find out more information. My husband, Matt, now...
Thanks Barbara! Every day is a new day with this thing, that is for sure. I feel out of control and don't feel I have the resources to make wise choices....
Justine, My mother-in-law had her right parotid gland removed for the same reason. The ENT cut the facial nerve to the right side...
Sorry! It was rather strange that both had ACC but in different locations. My mother in law was diagnosed first in the late 80's. ENT...
Thank you for your response. There is some research that indicate that ACC may be caused by a human papalimoma virus (HPV). that would explain your mother...
hey stephan, my name is lori. I heard your an ACC survivor as well. i was diagnosed in 1990 at age 27. It was in my left maxilary...
I really would like to learn more about the lung surgery to have it removed from my lungs. . I did not know there was a surgery to help there. I have a...
Lori, We, my husband & I, were also interested in the surgery you had to remove the cancer from the lungs! Matt's mets is currently in both lungs. Are your...
hi justine, my name is lori. First i;d like to say how sorry i am that you;ve got this dreaded disease, especially at such a young age. I;m...
Hi barbara, about the lung surgery i had, i went 1 hour away to a university hospital cause it coulnt be done where i live. the spots...
Lori you have lived with ACC for 18 years and that gives me hope. Do you have neural invasion. How long has that been there and how does it affect your ...
no i dont have neural invasion, but i have lived a good long life and i know thru god i have many more years to come. Keep the faith thats what...
Hello each and everyone. I am new member just been accepted. I had adencystic carcinoma of the parotid gland in 1993, so 16 years ago come june, which is when...
Hi Josie, greetings and a big hug from Repúbica de Panamá. What great news! Welcome back. I'm sorry it took me so long to respond but I have been in the...
Congratulation to your long term success with ACC. I have had ACC for 2.5 years and am still wanting to know what foods the long term survivors eat. I...
Hi Josie, It is so encouraging to hear from longterm survivors. You give us hope that as the therapies get better survival improves. If you have your pathology...
Yes I had neural invasion, it destroyed the 7th facial nerve resulting in a stroke syndrome i.e dropped right side. However the clever surgical team took a...
No special diet. now eat mainly organic when I can and low fat. Am now diabetic so need to watch my sugar intake, on tablets for diatetes now. Do not relate...
No special diet. now eat mainly organic when I can and low fat. Am now diabetic so need to watch my sugar intake, on tablets for diatetes now. Do not relate...
So good to hear from you again. I hope all is well with you. Love Josie ... From: knippd <no_reply@yahoogroups.com> Subject: [AdenCyst] Re: new member To:...
They must have done a good job since you did not have a recurrence in so many years. Though you are not saying it, I understand that you are also free of...
Well I had my checkup in January, and he said all was ok and see him again in one year, 2010. ... From: Swizzie <swizzie7320@...> Subject: Re: [AdenCyst]...
Adencyst Group I was part of this online group back in 1998 and 1999 when I was first diagnosed and I met quite a few ACC survivors online who become good...
Hi Dan, Nice to see you back! Knowing how much you have to contribute to all ACC related matters I hope to see your postings often. rgds, Swizzie ACC sinus...
Mark was the first spammer to fool us since we stopped people from joining without any moderation or group approval, but he's toast now. Guess we'll have to...
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