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Texassarcoidosissupport · Houston Texas Sarcoidosis Support Group

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  • Members: 4
  • Category: Sarcoidosis
  • Founded: Mar 13, 2009
  • Language: English
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#70 From: Em Carroll <nineep@...>
Date: Tue Mar 16, 2010 3:16 pm
Subject: This is a must read.. SIGNS OF OVARION CANCER....
nineep2000
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Something every woman should know. If you are a man, give it to your wife.

Thanks,


 

SIGNS OF OVARIAN CANCER (even in the absence of Ovaries, and no matter what age you are)

THIS IS A MUST TO READ TO THE END 

An Eye Opener on Ovarian Cancer
 
I hope you all take the time to read this and pass it on to all you can.  Send this to the women in your life that you care about. 
 
A few years ago, Gilda Radner died of ovarian cancer.  Her symptoms were inconclusive, and she was treated for everything under the sun until it was too late..   This blood test finally identified her illness but alas, too late.  She wrote a book to heighten awareness.  Gene Wilder is her widower. 
 
KATHY'S STORY:  this is the story of Kathy West

As all of you know, I have Primary Peritoneal Cancer.  This cancer has only recently been identified as its OWN type of cancer, but it is essentially Ovarian Cancer. 
 
Both types of cancer are diagnosed in the same way, with the "tumour marker" CA-125 BLOOD TEST, and they are treated in the same way - surgery to remove the primary tumour and then chemotherapy with Taxol and Carboplatin.
 
Having gone through this ordeal, I want to save others from the same fate.  That is why I am sending this message to you and hope you will print it and give it or send it via E-mail to everybody you know. 
 
One thing I have learned is that each of us must take TOTAL responsibility for our own health care.  I thought I had done that because I always had an annual physical and PAP smear, did a monthly Self-Breast Exam, went to the dentist at least twice a year, etc.  I even insisted on a sigmoidoscopy and a bone density test last year.  When I had a total hysterectomy in 1993, I thought that I did not have to worry about getting any of the female reproductive organ cancers. 
 
LITTLE DID I KNOW.  I don't have ovaries (and they were HEALTHY when they were removed), but I have what is essentially ovarian cancer.   Strange, isn't it?
 
These are just SOME of the things our Doctors never tell us: ONE out of every 55 women will get OVARIAN or PRIMARY PERITONEAL CANCER. 
 
The "CLASSIC" symptoms are an ABDOMEN that rather SUDDENLY ENLARGES and CONSTIPATION and/or DIARRHEA. 
 
I had these classic symptoms and went to the doctor.  Because these symptoms seemed to be "abdominal", I went to a gastroenterologist.   He ran tests that were designed to determine whether there was a bacteria infection; these tests were negative, and I was diagnosed with "Irritable Bowel Syndrome".  I guess I would have accepted this diagnosis had it not been for my enlarged abdomen.   I swear to you, it looked like I was 4-5 months pregnant!  I therefore insisted on more tests.
 
They took an X-ray of my abdomen; it was negative.  I was again assured that I had Irritable Bowel Syndrome and was encouraged to go on my scheduled month-long trip to  Europe ..   I couldn't wear any of my slacks or shorts because I couldn't get them buttoned, and I KNEW something was radically wrong.  I INSISTED on more tests, and they reluctantly) scheduled me for a CT-Scan (just to shut me up, I think).   This is what I mean by "taking charge of our own health care.."
 
The CT-Scan showed a lot of fluid in my abdomen (NOT normal).  Needless to say, I had to cancel my trip and have FIVE POUNDS of fluid drawn off at the hospital (not a pleasant experience I assure you), but NOTHING compared to what was ahead of me. 
 
Tests revealed cancer cells in the fluid.  Finally, finally, finally, the doctor ran a CA-125 blood test, and I was properly diagnosed. 
 
I HAD THE CLASSIC SYMPTOMS FOR OVARIAN CANCER, AND YET THIS SIMPLE CA-125 BLOOD TEST HAD NEVER BEEN RUN ON ME, not as part of my annual physical exam and not when I was symptomatic.   This is an inexpensive and simple blood test!
 
PLEASE, PLEASE TELL ALL YOUR FEMALE FRIENDS AND RELATIVES TO INSIST ON A CA-125 BLOOD TEST EVERY YEAR AS PART OF THEIR ANNUAL PHYSICAL EXAMS. 


Be forewarned that their doctors might try to talk them out of it, saying, "IT ISN'T NECESSARY."  Believe me, had I known then what I know now, we would have caught my cancer much earlier (before it was a stage 3 cancer).   Insist on the CA-125 BLOOD TEST; DO NOT take "NO" for an answer!
 
The normal range for a CA-125 BLOOD TEST is between zero and 35.  MINE WAS 754.  (That's right, 754!).  If the number is slightly above 35, you can have another done in three or six months and keep a close eye on it, just as women do when they have fibroid tumours or when men have a slightly elevated PSA test (Prostatic Specific Antigens) that helps diagnose prostate cancer. 
 
Having the CA-125 test done annually can alert you early, and that's the goal in diagnosing any type of cancer - catching it early.. 
 
Do you know 55 women?  If so, at least one of them will have this VERY AGGRESSIVE cancer.  Please, go to your doctor and insist on a CA-125 test and have one EVERY YEAR for the rest of your life.. 
 
And forward this message to every woman you know, and tell all of your female family members and friends..  Though the median age for this cancer is 56, (and, guess what, I'm exactly 56), women as young as 22 have it.   Age is no factor.
 
A NOTE FROM AN RN:
Well, after reading this, I made some calls.  I found that the CA-125 test is an ovarian screening test equivalent to a man's PSA test prostate screen (which my husband's doctor automatically gives him in his physical each year and insurance pays for it).   I called the general practitioner's office about having the test done.  The nurse had never heard of it.  She told me that she doubted that insurance would pay for it.  So I called Prudential Insurance Co, and got the same response. Never heard of it - it won't be covered.

I explained that it was the same as the PSA test they had paid for my husband for years.  After conferring with whomever they confer with, she told me that the CA-125 would be covered. 

It is $75 in a GP's office and $125 at the GYN's. This is a screening test that should be required just like a PAP smear (a PAP smear cannot detect problems with your ovaries).  And you must insist that your insurance company pay for it. 
 
Gene Wilder and Pierce Brosnan (his wife had it, too) are lobbying for women's health issues, saying that this test should be required in our physicals, just like the PAP and the mammogram.   PLEASE TAKE A MOMENT TO SEND THIS OUT TO ALL THOSE YOU CAN.  BE IT MALE OR FEMALE, IT SHOULD NOT MATTER, AS THEY CAN FORWARD IT ALSO TO THOSE LOVED ONES THEY KNOW. 
 
IF YOU HAVE A PROBLEM WITH FORWARDING SOMETHING AS IMPORTANT AS THIS, HERE'S A LITTLE HINT THAT MAY ASSIST YOU WITH YOUR DECISION ~ JUST PRETEND THAT THIS IS A JOKE, WHICH IT CERTAINLY IS NOT, AND SEND IT OUT TO ALL THE FOLKS YOU WOULD IF IT WAS.   THANKS.
 

 

 

:

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#71 From: Em Carroll <nineep@...>
Date: Sat Apr 3, 2010 2:33 pm
Subject: Sarcoidosis Rally and Walk in Columbia, South Carolina on April 1oth
nineep2000
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SARCOIDOSIS AWARENESS MONTH

Sarcoidosis of South Carolina

Sponsors

"RALLY and WALK"

Join Us!

When: Saturday, April 10, 2010

Where: SC Statehouse Capital grounds
Gervais Street location-on state capital steps
Time: 10:00 am – 11:30 am

Cost: Free

*We will walk around the state house starting at 9:30 am.

The purpose of the Sarcoidosis "rally and walk" is to heighten awareness and promote education about Sarcoidosis. There will be speakers, Sarcoidosis information/merchandise and other health materials. It is a great opportunity for those with Sarcoidosis to learn more about Sarcoidosis, get resources, and network with other individuals with Sarcoidosis. Also, families and friends can meet others who support loved ones with Sarcoidosis or network with others who have lost loved one due to complications associated with Sarcoidosis. We encouraged those diagnosed with Sarcoidosis to attend and we invite health/medical care providers, social/human service specialists, other professionals who provide services to persons diagnosed with Sarcoidosis, and the general public. See You There!

For more information contact Eddie Glenn Bryant, PhD (803) 779-2732 or glenn3605@bellsouth.net or www.sarcoidosis-sc.org



#72 From: Em Carroll <nineep@...>
Date: Tue Apr 13, 2010 1:16 am
Subject: ATS Breathing Better with the ATS and FSR
nineep2000
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REMINDER! If you are planning to attend the ATS International Conference in New Orleans next month, please join us for this FREE patient/family event, “Breathing Better with the ATS.” Come talk to clinicians and hear about the state-of-the-art as well as the latest in clinical trials.

Please distribute these flyers to all your contacts in the New Orleans area and encourage all to attend.

Lunch will be provided at the Meet-the-Expert event and the ATS has also arranged for discounted parking for attendees. Please, all attendees RSVP to cwhite@... by next Friday April 23, 2010. See the attached flyers.

The flyers are also online at the links below:

http://patients.thoracic.org/par/resources/breathing-better-with-the-ats2010.pdf

http://patients.thoracic.org/par/resources/meet-the-expert-2010.pdf

Courtney L. White (Mr)
Manager, ATS Research Program
and Public Advisory Roundtable
American Thoracic Society 
61 Broadway, 4th Floor
New York, NY 10006-2755
Tel.: (212) 315-8640 
Fax: (212) 315-6489 
Email: cwhite@...

Emma Carroll
Executive Director
832-248-6621
 
(www.goodsearch.com - powered by Yahoo! )
 
Empowering the Community through Sarcoidosis Education and Outreach



#73 From: Em Carroll <nineep@...>
Date: Thu Apr 15, 2010 2:49 am
Subject: Sarcoidosis Links from my sarcoid bud, Kipy
nineep2000
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This is a great site! I put Sarcoidosis in the search bar and got 5 pages of sarcoisosis links. Just click on this link:http://www.healthlinkusa.com/hl/hlsearchsh.fwx?words=ALL&searchtext=Sarcoidosis

Emma Carroll
Executive Director
832-248-6621
 
(www.goodsearch.com - powered by Yahoo! )
 
Empowering the Community through Sarcoidosis Education and Outreach



#74 From: Em Carroll <nineep@...>
Date: Mon May 3, 2010 3:51 pm
Subject: Who Will You Save?
nineep2000
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Who Will You Save? Power To End Stroke | American Heart Association | American Stroke Association

Having trouble viewing this message? You may also view it as a web page.




May is American Stroke Month.  Join the American Heart Association and take two minutes to save two lives with the
Take 2 to Save 2 program.  Think about two people you care about who may smoke, be overweight, have high blood pressure, diabetes or a family history of heart disease and stroke.  People with these risk factors are at increased risk of being disabled or dying from a stroke.  Visit our website to learn more and find special health messages that you can share with your loved ones…it just might save their lives.

Mother’s Day is right around the corner, haven’t gotten her a gift yet?  ShopPower.org has great gifts for Mom such as the Best of Healthy Soul Food Cookbooks ($10), PTES Yoga Mat ($14.50), PTES Bracelet Set ($20). 


Are you a stroke survior?  Caregiver?  Get Stroke Connection E-zine for FREE!  Stroke Connection brings information and inspiration right to your mailbox. From in-depth information on conditions such as aphasia, central pain, high blood pressure and depression, to tips for daily living from healthcare professionals and other stroke survivors, Stroke Connection keeps you abreast of how to cope, how to reduce your risk of stroke and how to make the most of each day.  Subscribe Now!




The Bristol-Myers Squibb/Sanofi Pharmaceuticals
Partnership is a National Sponsor of Power To End Stroke.

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Informz

#75 From: Em Carroll <nineep@...>
Date: Tue May 4, 2010 10:25 pm
Subject: Fighting For Air Online -- May 2010
nineep2000
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American Lung Association
American Lung Association - Fighting for Air Online
May 2010   Print  |  Email Us

State of the Air America's Cities Show Success Fighting for Air
Cities across the U.S. are showing success in the fight for healthy air. But despite these gains, the American Lung Association’s State of the Air 2010 report still finds that healthy air remains a goal, not a reality for most U.S. cities. The report also finds that 58 percent of Americans more than 175 million live in areas with unhealthy levels of air pollution. Are you one of them? And what can you do about it? We have answers. »  More


This Mother’s Day, Help Your Mom Go Smokefree
This Mother’s Day, give your mom the gift that not only lasts a lifetime, but can lead to a longer, healthier lifetime help her quit smoking. Smoking is the leading cause of preventable death in America, and its toll on women—including mothers—is tragic. If your mom is a smoker, and wants to quit, why not show your love for her with a gift membership to the American Lung Association’s Freedom From Smoking©Online? »  More
7 Asthma/COPD Inhalers to be Phased Out
On April 13, the U.S. Food and Drug Administration (FDA) announced the phase out over the next few years of certain kinds of inhaled medications used to treat asthma and COPD. Seven metered-dose inhalers (MDI) used to treat asthma and chronic obstructive pulmonary disease (COPD) will be gradually removed from the U.S. marketplace. Four of the seven CFC inhalers are no longer being made. Three CFC inhalers currently in use—Aerobid, Combivent, and Maxair—will be phased out over the next one to three years. »  More
More Lung Association News
In The News
Asthma Friendly Schools Is your child’s school asthma friendly?
Asthma is one of the main reasons that students miss school due to illness—nearly 13 million lost school days every year. The Asthma Friendly Schools Initiative provides a framework and tools that communities and schools can use to work together on a comprehensive approach to asthma management, including planning tools, policy recommendations, and education programs. Learn more
 
In This Issue...
America's Cities Show Success Fighting for Air

This Mother’s Day, Help Your Mom Go Smokefree

7 Asthma/COPD Inhalers to be Phased Out

More Headlines

 
 
NEW! American Lung Association Bank of America Products
 
Bank of America
 
Your everyday purchases can help raise funds to support the Lung Association’s research, education and advocacy efforts. With the American Lung Association Visa® credit card, checking account and debit card, you can help change the lives of people affected by lung disease. In addition, every time you use your credit or debit card to make a purchase, Bank of America will contribute a percentage to the Lung Association. Click here for more information and to open an account.
American Lung Association
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T: (202) 785-3355 | F: (202) 452-1805 | E: e-Newsletters@...
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#76 From: Em Carroll <nineep@...>
Date: Wed May 5, 2010 3:35 pm
Subject: FW: Brenda B Ford wants to share this Medical News Today article with you
nineep2000
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I am sitting crying ---with relief to a 15 year old question---for the research performed---for the doctors who study sarcoidosis---for those who have surcumbed to it---for those living with sarc-- now they might get a good treatment---for an answered prayer--for the knowledge of all involved---and especially for God showing them the way in their research.

Stop for one minute and say a prayer of thanks and for those fighting this disease that this will give a ray of HOPE---which is the best medicine anyone can get.

Brenda
 
SUPPORT SARCOIDOSIS AWARENESS

EMAIL ME TO FIND OUT MORE


--
Subject:
Brenda B Ford wants to share this Medical News Today article with you

Dear Brenda,

Brenda B Ford saw this article on the Medical News Today website and thought you might be interested in it:

************************************************************

A Century-Old Puzzle Comes Together, Scientists ID Potential Protein Trigger In Lung Disease Sarcoidosis

Lung researchers at Johns Hopkins have identified a possible protein trigger responsible for sarcoidosis, a potentially fatal inflammatory disease marked by tiny clumps of inflammatory cells that each year leave deep, grainy scars on the lungs, lymph nodes, skin and almost all major organs in hundreds of thousands of Americans...

To read the full article, please go to:
http://www.medicalnewstoday.com/articles/187493.php

************************************************************

-- Disclaimer --
Medical News Today is not responsible for the content of this e-mail. Anything written in this e-mail does not necessarily reflect the views or opinions of Medical News Today. Please note that this e-mail is an automated notification e-mail, sent by Brenda B Ford, via a form on the Medical News Today website. For that reason, neither the e-mail address nor name of the sender have been verified.

#77 From: Em Carroll <nineep@...>
Date: Mon May 10, 2010 3:13 pm
Subject: SAVE THE DATE - Sixth Annual Sarcoidosis Walk for a Cure!
nineep2000
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Janine’s Sarcoidosis Outreach Foundation

Sith Annual Sarcoidosis Walk for a Cure

Saturday, October 30, 2010

JCC  Parking Lot (Staging Area)

5601 S. Braeswood Blvd

Houston, TX 77096

 

The walk will be approximately 2.0  miles 

around the Braes Bayou Trail

 

Registration begin 8:30 am

Step-Off 10:00 am

 

Opening Welcome: Mary Benton,

KPRC TV Channel2

 

Emcee: Praise 92.1

on air personality "Nzinga"

 

Entertainment: To be announced

 

For information or sponsorship: 832-248-6621

 

Email: Sarcoidosis@...

Website: www.JSOF.ORG

 

Please Save the date and watch for future announcements.  Please join us: come and support the cause for a cure or,  go on line to make a tax exempt donation. We are better to gether! 

 

 

 empowering communities through sarcoidosis education and outreach


#78 From: Em Carroll <nineep@...>
Date: Sun May 16, 2010 6:43 pm
Subject: Baton Rouge, Louisiana Group Meeting 5-19-10
nineep2000
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> Subject: Group Meeting 5-19-10
>
> Dear members,
> We will be holding our monthly group meeting on May 19, 2010 at Ochsner on Smma In the 4th floor conference room at 6:00 PM.
>
> --
> Rodney K. Reese
> Group Leader
> Sarcoidosis Awareness Support Group of Greater Baton Rouge

#79 From: Em Carroll <nineep@...>
Date: Wed May 26, 2010 2:35 pm
Subject: FW: 13 things a burglar wont tell you
nineep2000
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 13 Things Your Burglar Won't Tell You:


1.   Of course I look familiar. I was here just last week cleaning your carpets, painting your shutters, or delivering your new refrigerator.

2.  Hey, thanks for letting me use the bathroom when I was working inyour yard last week. While I was in there, I unlatched the back windowto make my return a little easier.

3.  Love those flowers. That tells me you have taste ... and taste meansthere are nice things inside. Those yard toys your kids leave out alwaysmake me wonder what type of gaming system they have.

4.  Yes, I really do look for newspapers piled up on the driveway. And Imight leave a pizza flyer in your front door to see how long it takesyou to remove it.

5.  If it snows while you're out of town, get a neighbor to create carand foot tracks into the house. Virgin drifts in the driveway are a deadgiveaway.

6.  If decorative glass is part of your front entrance, don't let youralarm company install the control pad where I can see if it's set. Thatmakes it too easy.

7.  A good security company alarms the window over the sink. And thewindows on the second floor, which often access the master bedroom-andyour jewelry. It's not a bad idea to put motion detectors up there too.

8.  It's raining, you're fumbling with your umbrella, and you forget tolock your door-understandable. But understand this: I don't take a dayoff because of bad weather.

9.  I always knock first. If you answer, I'll ask for directionssomewhere or offer to clean your gutters.   (Don't take me up on it.)

10. Do you really think I won't look in your sock drawer? I always checkdresser drawers, the bedside table, and the medicine cabinet.

11. Helpful hint: I almost never go into kids' rooms.

12.  You're right: I won't have enough time to break into that safe whereyou keep your valuables. But if it's not bolted down, I'll take it withme.

13. A loud TV or radio can be a better deterrent than the best alarmsystem. If you're reluctant to leave your TV on while you're out oftown, you can buy a $35 device that works on a timer and simulates theflickering glow of a real television. (Find it at faketv.com.)

8 MORE THINGS A BURGLAR WON'T TELL YOU:


1. Sometimes, I carry a clipboard. Sometimes, I dress like a lawn guyand carry a rake.. I do my best to never, ever look like a crook.

2. The two things I hate most: loud dogs and nosy neighbors.

3. I'll break a window to get in, even if it makes a little noise. Ifyour neighbor hears one loud sound, he'll stop what he's doing and waitto hear it again.. If he doesn't hear it again, he'll just go back towhat he was doing. It's human nature.

4. I'm not complaining, but why would you pay all that money for a fancyalarm system and leave your house without setting it?

5. I love looking in your windows. I'm looking for signs that you'rehome, and for flat screen TVs or gaming systems I'd like. I'll drive or walk through your neighborhood at night, before you close the blinds, just to pick my targets.

6. Avoid announcing your vacation on your Facebook page. It's easier than you think to look up your address.


7. To you, leaving that window open just a crack during the day is a way to let in a little fresh air.
To me, it's an invitation.

8. If you don't answer when I knock, I try the door. Occasionally, I hitthe jackpot and walk right in.

Sources: Convicted burglars in North Carolina , Oregon , California , and Kentucky; security consultant Chris McGoey, who runs crimedoctor.com;and Richard T. Wright, a criminology professor at the University ofMissouri-St. Louis, who interviewed 105 burglars for his book Burglarson the Job.
 
Protection for you and your home
If you don't have a gun, here's a more humane way to wreck someone's evil plans for you.  
I guess I can get rid of the baseball bat.

Wasp Spray
A friend who is a receptionist in a church in a high risk area was concerned about someone coming into the office on Monday to rob them when they were counting the collection.  She asked the local police department about using pepper spray and they recommended to her that she get a can of wasp spray instead.

The wasp spray, they told her, can shoot up to twenty feet away and is a lot more accurate, while with the pepper spray, they have to get too close to you and could overpower you.  The wasp spray temporarily blinds an attacker until they get to the hospital for an antidote. She keeps a can on her desk in the office and it doesn't attract attention from people like a can of pepper spray would. She also keeps one nearby at home for home protection...
Thought this was interesting and might be of use.

Wasp And Hornet Spray
On the heels of a break in and beating that left an elderly woman in Toledo dead, self defense
experts have a tip that could save your life.

Val Glinka teaches self-defense to students at Sylvania Southview High School .  
For decades, he's suggested putting a can of wasp and hornet spray near your door or bed.
Glinka says, "This is better than anything I can teach them."

Glinka considers it inexpensive, easy to find, and more effective than mace or pepper spray.  
The cans typically shoot 20 to 30 feet; so if someone tries to break into your home, Glinka  
says, "spray the culprit in the eyes".  It's a tip he's given to students for decades. It's also  
one he wants everyone to hear. If you're looking for protection, Glinka says look to the spray.
"That's going to give you a chance to call the police; maybe get out."
Maybe even save a life. Please share this with all the people in your life.  


Emma Carroll, Executive Director
832-248-6621
Empowering the Community through Sarcoidosis Education and Outreach




#80 From: Em Carroll <nineep@...>
Date: Thu May 27, 2010 5:52 pm
Subject: : Faces of COPD e-Newsletter, May 2010 (Vol 2. No.5)
nineep2000
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Subject: Faces of COPD e-Newsletter, May 2010 (Vol 2. No.5)

COPD FoundationCOPD Foundation - Faces of COPD NewsletterYear Of The Lung
Volume 2, Number 5 * May 26, 2010

May’s Year of the Lung theme is women’s health. We have a shortened version of one of our blog posts on women and COPD. Did you know that COPD affects more women than men, and it is more prominent than Alzheimer’s and breast cancer? In this issue, we’re also giving you a recap of some events, including the COPD Shuttle launch (a “Journey into the Center of the Lung”) and the COPD Foundation’s New York City Lung Health Fair. Also check out our new Baking For Good partnership (yummy!), and some info about next month’s COPD summit in New York and how to maintain your POCs.

• Is COPD an Equal-Opportunity Disease?
• New York COPD Coalition Summit, June 11th
• The Shuttle Has Launched . . . and Landed!
• New York City Explores Lung Health at Second Annual Lung Health Fair
• Baking for Good
• Maintaining Your Portable Oxygen Concentrator



Is COPD an Equal-Opportunity Disease?

According to the NHLBI, COPD kills more women than men each year. In 2006, COPD killed more women than breast cancer, Alzheimer’s and diabetes.

The CDC states that women’s rates are rising much faster than men’s.

“These increases probably reflect the increase in smoking by women, relative to men, since the 1940s. In the United States, a history of currently or formerly smoking is the risk factor most often linked to COPD, and the increase in the number of women smoking over the past half-century is mirrored in the increase in COPD rates among women," the CDC says. "The decreases in rates of mild and moderate COPD in both men and women aged 25-54 in the past quarter century reflect the decrease in overall smoking rates in the United States since the 1960s."

Dr. David Mannino says women who have COPD have some specific areas that requires additional attention from their providers.
“For example, women are at an increased risk for osteoporosis, and patients with COPD are also at an increased risk. Thus, women with COPD are at a very high risk and should be evaluated and receive intervention as appropriate.”
According to the World Health Organization, COPD used to be more common in men.

“But because of increased tobacco use among women in high-income countries, and the higher risk of exposure to indoor air pollution (such as solid fuel used for cooking and heating) in low-income countries, the disease now affects men and women almost equally.”

To read a full-length article about women’s health and COPD, sign up to receive our spring issue of the COPD Digest: www.copddigest.org.


                                                                                                        Back to Top


New York COPD Coalition Summit, June 11th

The New York COPD Coalition Summit, which is taking place June 11th, will focus on creating a COPD Action Plan for the state.

The summit will bring together the COPD Foundation, and other members of the New York COPD Coalition to collaborate and create a comprehensive document that will state the rationale for addressing COPD statewide. It will also present objectives and strategies for how to combat the burden of COPD in New York.
Co-chairs of the COPD Coalition, Neil Schachter, MD, Mount Sinai Medical Center and Byron Thomashow, MD, Columbia-New York Presbyterian Hospital, say the Summit will focus on the impact of COPD in the state.   
“Millions of people nationwide unknowingly suffer from COPD. Many of these people go untreated and remain symptomatic but undiagnosed, “ Thomashow says. “This is a nationwide problem, but a big problem in the state of New York. Hopefully this New York coalition, as well as other state ones, will mobilize the health care community to improve our efforts to prevent, diagnose and treat this disease.”

Schachter says the perception of COPD has gone from no recognition to people realizing the importance of it.

“The great thing is state by state, the Coalition is organizing these summits so that there can be groups in each state that represent the needs of our COPD patients,” he says. “It’s an opportunity to get many interested parties in the state of New York together to share their questions and needs at all levels—advocacy, patient care, support groups.”

Schachter also says the Summit will hopefully result in giving the Coalition members a “better idea of what’s going on in the state and meet needs.”

“It’s an exciting time for the community. Not only are we making a lot of advances for advocacy through better clinical practice, there are lots of people working on research, too,” he says. “It will help treat the disease better, and to reverse and [hopefully one day] prevent this disease.”
The action plan formulated at the Summit will take a comprehensive approach to tackle COPD issues at a healthcare provider level as well as in patient programs and education, employer programs and state public health programs.

Scott T. Santarella, President and CEO of the American Lung Association in New York, says the Summit is the “critical first step needed to ensure a comprehensive and effective plan to reach New Yorkers with COPD is in place.”
“There are many New Yorkers who suffer from COPD and many more who are unaware they even have the disease,” Santarella says.
He also says the ultimate goal of the summit is to help COPDers better manage their disease and live healthier lives.
Jamie Lamson, Program Director for the U.S. COPD Coalition, says there is a need to include all types of stakeholders in this effort, including those outside the healthcare system.
“We have to take a comprehensive approach to addressing COPD since its effects are felt not just in the lungs of the patients,” she says.
The morning sessions of the Summit will be informational, presenting issues in COPD and initiatives currently underway. There will be discussion about COPD basics, care management, public policy and data surveillance. In the afternoon, there will be sessions focused on drafting the New York COPD Action Plan.
The summit will be attended by healthcare professionals, patients, public health professionals, policy makers, employers, insurers, etc.
For more information, contact Jamie Lamson at jlamson@... or call 1-866-731-2673 ext. 455.
To register, click here.

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The Shuttle Has Launched . . . and Landed!

This year, the COPD Foundation made its biggest splash yet at the American Thoracic Society’s International Conference in New Orleans, LA. Several new programs were introduced to the medical community, including the long awaited launch of the COPD Shuttle: Journey to the Center of the Lung.

The 3D lung health simulator takes up to 20 people at a time on a voyage from outer space into the inner workings of the lung. The riders get to experience what it’s like to travel through the lungs, see the effects of environmental pollution and cigarette smoke on the lungs, and even get coughed out! The 6-minute presentation teaches any participant the basics of lung health and COPD—whether they knew anything about it beforehand or not.

At the ATS conference, over 2,800 people were the first to take the Shuttle ride, and it’s expected that thousands more across the east coast will get to experience the ride throughout the summer. Tomorrow, the Shuttle will make an appearance in At the National Institutes of Health in Bethesda, MD. (If you’re in the area, check our website calendar for details on how to experience the ride first-hand.)

We also unveiled a new phase of our Faces of COPD project. You have already heard about our photo contest, but now we’re scaling it to an international level. The “Our Lives, Our Air” project will send 500 cameras to COPDers across the globe so they can capture their lives what they perceive what it’s like to live with COPD on film. The COPD Foundation is working with partners to put together an album that will help show how COPD affects people worldwide in different—and similar—ways. For more information about this program, visit www.ourlivesourair.org.


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New York City Explores Lung Health at Second Annual Lung Health Fair

By Janina Kowalski

In conjunction with Columbia University and 1199SEIU, the largest health care union in the United States, the COPD Foundation held a lung health fair in Times Square, New York City on May 5th.

The educational event consisted of a CME (continued medical education) credit program for healthcare professionals and an informal health fair open to the public with topics including asthma, COPD, interstitial lung disease, lung cancer, environmental factors on the lung and genes and the lung.

During the concurrent COPD Foundation Lung Health Fair, patients and practitioners mingled amongst over thirty exhibits offering free educational materials and health screenings. A diverse array of exhibitors represented the pharmaceutical industry, home health care industry, durable medical equipment field, fitness organizations, and nutritional programs. In addition, various non-profit organizations offered up educational materials, free spirometry testing, and smoking cessation materials.

The event focused on 2010 as the International Year of the Lung and featured notable speakers including President of the COPD Foundation John Walsh, R. Graham Barr, MD, COPD Foundation Chairman of the Board Byron M. Thomashow, MD, Emily DiMango, MD, David J. Lederer, MD, FCCP, Evelyn M. Horn, MD, Selim M. Arcasoy, MD, FCCP, FACP, Mario Romagnoli, MD, David H. Chong, MD, Charles A. Powell, MD, Rafael E. De La Hoz, MD, MPH, and Adam Wanner, MD.

The COPD Foundation would like to thank the following organizations for their support:

Platinum Sponsors:
Boehringer Ingelheim Pharmaceuticals, CSL Behring Pharmaceuticals

Gold Sponsors:
Healthways Silver Sneakers Program, American Legacy Foundation, Pfizer

Silver Sponsors:
Monaghan Medical, GlaxoSmithKline, Hill-Rom, ElectroMed

This event is an annual partnership and the COPD Foundation looks forward to the 2011 NYC Lung Health Fair. For more information on exciting and FREE educational events in your area, please visit us at www.copdfoundation.org. Additionally, if you or your organization is interested in organizing a lung health fair in your area, please contact us at info@... for more information.


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Baking for Good

We’re excited to share with you our newest partnership with Baking for Good. As an "online bakery," they are partnered with causes and organizations and committed to helping them raise money by allowing 15 percent of each purchase going toward the cause of the customers’ choice.

We know that everyone loves baked goods in moderation, so the next time you want to send someone a sweet treat for their birthday or just let them know you’re thinking of them, go to the Baking for Good’s online bakery and list the COPD Foundation as your cause!

According to their website, they use only the “finest, all-natural, organic, local and seasonal ingredients” to make their delicious baked goods.

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Maintaining Your Portable Oxygen Concentrator

By Lauren Hassman,
a Respiratory Equipment Specialist for OxygenConcentratorDepot.com.


Maintaining your portable oxygen concentrator (POC) can save you a lot of unnecessary headaches. For such an easy task, it is overlooked many times until it is too late. There are only a few things to do to keep your portable oxygen concentrator functioning properly.

Battery Power
Batteries are one of the most expensive accessories for a portable oxygen device. Keeping them functioning as long as possible should be a priority since they can cost upwards of $400 a piece.  Most batteries are lithium ion batteries. Keep these batteries charged even when you are storing them. It’s a good idea to charge the batteries every couple of weeks even if they are not being used. When you store them, it’s best to do it in a cool, dry environment.

Change your particle filter as often as possible.
Your oxygen concentrator is continuously pulling air in your room and turning it into medical grade oxygen. The particle filter stops dust from entering the unit. As it catches more dust and particles, it makes the oxygen machine work harder to produce oxygen. Your environment will depend on how often you should clean your filter. For example, if you live by a dusty construction site, it would be a good idea to clean it every day. Usually, in a clean environment you should still clean it out after a week’s worth of use.

Cleaning the filter is a simple task.  Most portable oxygen concentrators have the particle filter easily accessible. Use these three simple steps to wash your filter.

1.    Take the filter out of the device.
2.    Wash the filter with warm tap water without soap.
3.    Air-dry the filter.

Keep it Squeaky Clean
Cleaning the oxygen device is another simple chore that will keep your unit always looking new. When you’re cleaning your unit, make sure it’s unplugged from the A/C (wall adapter) or D/C (cigarette lighter) power supply. Clean the outside of the unit with a soft, damp cloth. You can use a mixture of 10 percent household bleach and water on most of the portable units. 

Tips for When You Travel
Recently, the FAA approved four more POCs for use on airlines effective immediately.

The newly authorized devices are The life Choice by Inova—weighing under 5 pounds—which is capable of delivering pulse dose up to 3 liters with a 5-6 hour duration, with a built-in sleep mode allowing greater breath sensitivity that allows many continuous oxygen users to use the unit at night.
The DeVilbiss IGO, weighing in at 19 pounds, is capable of delivering continuous flow at 3 liters for almost 2 hours, and 3 liters pulse for 4 hours duration .

The Inogen 1 G2 weighing in just under 10 pounds is capable of pulse delivery up to 5 liters and a maximum battery life of 3 hours at 2 liters.

Oxylife Independence, weighing in at just under 15 pounds, with a duration of 3 hours at 2 liters conserve and 1 hour at 3 liters continuous.

Accessorize!
There are many accessories available for portable oxygen concentrators. An important one is a weather cover: you never know when you will be caught out in the rain or snow!

Save Energy
When you’re home and not using your portable unit, make sure it’s off and unplugged from the wall. Keeping the power on will put wear and tear on the unit, even if you’re not using it. At home, use your home oxygen concentrator and save your portable’s life for when you really need it.
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The dissemination of this e-newsletter is supported by Novartis Pharmaceuticals, Inc.

Connect with the COPD Foundation via:

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COPD FOUDNATION The mission of the COPD Foundation is to develop and support programs which improve the quality of life through research, education, early diagnosis and enhanced therapy for persons whose lives are impacted by Chronic Obstructive Pulmonary Disease (COPD).

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#81 From: Em Carroll <nineep@...>
Date: Thu Jun 3, 2010 4:05 pm
Subject: FW: Fighting For Air Online -- June 2010
nineep2000
Send Email Send Email
 

Subject: Fighting For Air Online -- June 2010

American Lung Association
American Lung Association - Fighting for Air Online
June 2010   Print  |  Email Us

Fighting for Air Fighting for Air—New Generation Introduced to American Lung Association
Anyone too young to remember when tuberculosis was an American epidemic, when public places were choked with secondhand smoke, and most cities were shrouded in noxious smog, is probably too young to know that the American Lung Association fought to make all those things better. But that’s all about to change, as a national ad campaign rolls out to introduce a new generation to the American Lung Association and the fight for air. » More


Most States Falling Short on Tobacco Policies
According to a new report released by the American Lung Association, very few states are funding programs to prevent kids from starting to smoke and help smokers quit at levels that truly make a difference in the number of people that smoke. » More
Lung Researchers Earn Top Honors from American Thoracic Society
Robert A. Wise, M.D, the Director of the American Lung Association’s Asthma Clinical Research Centers (ACRC) Data Coordinating Center, received the American Thoracic Society’s 2010 Distinguished Achievement Award at the society’s International Conference in New Orleans on May 16, for his outstanding contributions to fighting respiratory disease through research, education, patient care, and advocacy. » More
More Lung Association News
In The News
Freedom from Smoking Online Quit Smoking with Freedom From Smoking Online!
If you smoke and you’re ready to quit, check out the all new Freedom From Smoking® Online. America’s gold standard in quit-smoking programs was updated this year and offers all the help you need to quit smoking. When you become an FFS Online Premium member, you’ll have access to detailed activities that take you through the quitting process step by step. You’ll also have access to the FFS Online Community, where you can blog, ask questions and get support from others who know just what you’re going through. For just pennies a day, FFS Online Premium members can achieve their freedom from smoking. » Learn more
 
In This Issue...
Fighting for Air—New Generation Introduced to American Lung Association

Most States Falling Short on Tobacco Policies

Lung Researchers Earn Top Honors from American Thoracic Society

More Headlines

 
NEW! American Lung Association Bank of America Products
 
Bank of America
 
Your everyday purchases can help raise funds to support the Lung Association’s research, education and advocacy efforts. With the American Lung Association Visa® credit card, checking account and debit card, you can help change the lives of people affected by lung disease. In addition, every time you use your credit or debit card to make a purchase, Bank of America will contribute a percentage to the Lung Association. Click here for more information and to open an account.
American Lung Association
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#82 From: Em Carroll <nineep@...>
Date: Wed Jun 30, 2010 7:45 pm
Subject: FW: Faces of COPD e-Newsletter, June 2010 (Vol 2. No.6)
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COPD FoundationCOPD Foundation - Faces of COPD NewsletterYear Of The Lung
Sign the STOP COPD
PETITION!

Volume 2, Number 6 * June 30, 2010

The month of June is almost over and we’re all well underway into the summer. That means a lot of re-adjusting for COPDers, but nothing to worry about. The outdoors can still be enjoyable, and you can learn how to make it enjoyable in this issue of the e-newsletter. Men: we’re also dedicating an article to you and your health. The effects of the Gulf’s oil spill on COPDers are on everyone’s minds, but we have good news from the region. We also talk a bit about our COPD Educator program for respiratory therapists, the US COPD Coalition’s webinars (open to anyone!) and comments the COPD Foundation made on a federal document concerning Multiple Chronic Conditions. We hope this issue will be beneficial to you!


• No Need for Alarm Yet: BP Oil Spill and its Effects on COPDers
• Summer Blues No More
• Man Talk: Being Healthy This Summer
• COPD Educator Course
• It’s Not Too Late to Sign Up for Free COPD Webinars!
• COPDF Comments on Federal Document to Address Multiple Chronic Conditions




No Need for Alarm Yet: BP Oil Spill and its Effects on COPDers

Although the oil spill in the Gulf of Mexico is affecting thousands of animals and marine life, COPDers who live inland need not worry about it causing more damage to their health.

“I mean, it can certainly affect individuals with COPD, and we’ve seen a number of exacerbations of COPD in the clinic which may be related to the oil spill, but the heaviest exposed individuals with complaints related to the BP oil spill are the people with direct contact [to the oil],” says Dr. Judd Shellito, Chief of Pulmonary/Critical Care Medicine at Louisiana State University’s School of Medicine.

Shellito, who is also Vice Chair of Research in the Department of Medicine at LSU, is referring to the April 20th explosion of BP’s Deepwater Horizon offshore oil rig. The explosion caused thousands of gallons of oil to flood into the Gulf, harming marine life and raising health fears in the nearby states of Louisiana and Mississippi.

He says that the exposure they anticipate will come from two sources. Photo by Geoff Livingston

“From the vaporization of the actual oil itself, and the other worrisome one is combustion of byproducts of burning the oil as a way to get rid of it,” he says. “Depending on the wind direction, it can reach populated areas. On some days in the city of New Orleans, you can smell the burning oil, but not every day.”

Shellito also says those two exposures change the air quality in New Orleans.  
“New Orleans has clean air in terms of industrial pollutants, but our air quality is not good because of allergens; we live in a jungle,” he says. “But this will change the air quality and there will be more days when the quality deteriorates, adversely impacting people with asthma or COPD or other forms of lung disease.”

As of June 10th, the Louisiana Department of Health and Hospitals had a reported 71 cases of oil spill-related illness. Fifty of those involved workers on oil rigs or those involved in the oil spill clean-up efforts, while 21 illnesses were reported by the general public.

Symptoms reported by workers included throat irritation, cough, chest pain, headaches, and shortness of breath, according to a CNN report.

The same report also says that Louisiana is keeping track of health complaints related to the spill through hospitals, clinics and first aid stations.

Every day, around 35,000 to 60,000 barrels of oil are leaking into the Gulf, with around 42,000 response workers to date.

Another concern with the oil spill is dispersants.

“Dispersants are chemicals that act like detergents to dissolve and break up oil,” Shellito says. “And they’re using tremendous quantities of that underwater to break up before it reaches the surface. In some cases they are also spraying dispersants on the surface as well.”

Shellito says there’s a lot of concern for the potential health impact of dispersants, since they have not been employed on this scale before.

Dispersants are mild respiratory irritants, so if they are released in the air, they have the capacity to cause symptoms in people with pre-existing lung disease.

Shellito also says that there is a lot of worry with COPDers in New Orleans about the affects of the oil spill on their lungs, but he says there is no need to become alarmed.

“If we get the oil spill stopped, the air quality will return to baseline levels,” he says. “The whole city is unnerved by this. The communities that are most impacted are the ones closer down to where the spill occurred, whose lives revolve around fishing or working on oil rigs. These communities are completely devastated and all of their livelihood has been taken away from them.”

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Summer Blues No More

The summer months bring soaring temperatures and humidity, which create more breathing challenges for COPDers.

Sindee Karpel, RRT and Clinical Coordinator for Respiratory Care at Edison State College in Florida, says that since COPDers already struggle to breathe, extreme temperatures are dangerous to people with pulmonary problems.

“Extreme temperatures make the body work harder,” Karpel says. “If [your body] is compromised to begin with, it adds extra stressors, which makes it worse. Keeping up with cooling off the body causes shortness of breath.

“You also have to be careful of dehydration. A lot of individuals with COPD also have congestive heart failure, so you have to hydrate, hydrate, hydrate because that could send them over the edge with their cardiac problem,” she says.

Karpel, who is also a member of the Southwest Florida COPD Community Team, says the heat causes inflammation in the airways. Thus, air conditioning can become a COPDers best friend in the summer.

“Of course, you have to make sure it’s functioning properly and that the filters are clean, because it can contribute to indoor air pollution [otherwise],” she says.

She also says that learning the proper weather terminology is important for COPDers to combat breathing problems.

“People watch the weather, but they may not understand what they’re watching and hearing,” Karpel says.

She says it is beneficial for COPDers to learn the definitions of humidity level, heat index and dew point, and to recognize comfortable levels of each.

“With humidity levels, what we’re really looking at is how much humidity there is in the air,” Karpel says. “At 95 degrees and 100 percent humidity, you will feel like a wet rag. But if it’s 30 degrees and 100 percent humidity there’s a lot less water held in the air at that temperature, so 100 percent relative humidity [in that situation] doesn’t feel so bad.”

She says heat index describes how a person perceives the heat.

“It puts heat and humidity together. With high heat indexes, it really impedes the body’s ability to cool down and that can cause chemical imbalances,” she says. “A lot of people who have COPD walk a fine line and any little thing can throw them off. That’s why a lot of people stay home [during extreme temperatures].”

The dew point is an expression of humidity.

“The higher a temperature is, the more uncomfortable a person will feel. Anything greater than 65 dew point is uncomfortable for anybody,” she says. “Around 55-59 would be comfortable and probably OK for individuals with COPD to go out in. The drier [or lower] the number is, the better they’ll feel when they go out.”  

A website called Airnow.gov can tell you what your local air quality conditions are, making it easier for COPDers to gauge what their breathing might be like before they step outside.

Bob Sobkowiak, a respiratory therapist and member of the Southwest Florida COPD Community Team, says during the summer COPDers should plan activities either early or late in the day, when temperatures are the coolest.

Karpel agrees. She also added that individuals with COPD should drink plenty of fluids, wear light clothing and even use the buddy system when going outside.

“Absolutely listen to the weather report before going out, and talk to your provider about what else can be done,” she says. “Sometimes it helps staying inside on the ‘dog days.’ If you want exercise, you could go to an air-conditioned mall and walk.”

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Man Talk: Being Healthy This Summer

By Sam Giordano, Executive Director of AARC

Maybe it’s in our genes. Maybe it’s the way we were raised. Maybe it goes back to those hunter/gatherer days. But, simply put, it’s generally accepted that we men don’t like to show weakness or ask for directions.

I think an extension of this phenomenon correlates to men’s health. Did you know that according to the Agency for Health Care Research and Quality (AHRQ) approximately 57 percent of men and 74 percent of women have visited a doctor within the past year?

Yet we men get hospitalized at much higher rates than women for conditions that could be prevented, including pneumonia. Remember, we can get a vaccination for that one. Perhaps it’s time that we answer that wake-up call (myself included). Let’s face it, guys —we hate to go to the doctor. We don’t have time. We’re always too busy and who looks forward to that dreaded prostrate examination? We need to get over it, especially if we want to live long and quality-filled lives.

I don’t know about you, but when I was about 20 or 21, I thought I was bulletproof and that I’d live forever. As we grow older and wiser, we realize the fallacy of that thinking.

When we hit 55 we begin our walk down the “infamous morbidity corridor,” as past Surgeon General Dr. Everett Koop once told me. That’s when we experience most diseases and ailments. Yes, when it hits us in the face, we do seek care, but that’s not the best way to run a railroad, is it?

We need to step up and, if you will, “man up” and commit ourselves to seeing our physicians on a regular basis to track down the aches and pains and ailments while they’re still relatively minor. We need to get over our machismo and admit that we are human and at times we can get sick.

But there’s more for us to do. Men need to train physically on a regular basis. No, we may not be on the team anymore, but physical exercise is a huge benefit to all, regardless of whether you’re in perfect health or you have COPD.

Look at pulmonary rehabilitation—the largest component of it and perhaps the largest benefit is physical conditioning. Some of us were born couch potatoes while others used to exercise in some shape or form. But we decided as we got older it was no longer necessary. The opposite is quite true. The older we get, the more we should exercise because it’s the least expensive health intervention that I know of.

We don’t need physical trainers, but if we know little to nothing about exercise, it’s good to get started with your physician. They can give you a thorough evaluation of your health condition and your ability and tolerance for exercise. You’ll start feeling better after you start an exercise regimen, and if you think about falling off the wagon, you’ll feel guilty and that will drive you back to your routine.
Health care can be an expensive proposition, especially hospitalizations. But, what’s your quality of life worth? Wouldn’t you rather have the stamina to be as active as you can be and stay plugged into to family activities and your social mainstream? Or would you rather be a potted plant, captive in your house with your window to the world—a television or computer?

We can control which road we’ll take and improve our health care and quality of life; but there’s a catch. We need to appreciate those regular visits to the doctor. We need to stop procrastinating and invest ourselves in health.

I urge you all to undertake an exercise or activity program, after an evaluation from your attending physician. For those of you already on the ball, I congratulate you and encourage you not to drop off. All should try to find a friend or companion who’ll walk with you or perhaps do some other form of low impact exercise.

The bottom line is that if we keep active and we take care of our bodies, we’ll be better positioned to avoid exacerbations of chronic conditions. If we commit to seeing our physician on a regular basis, we’ll keep our bodies tuned up and identify risk factors much earlier.  

This will result in less extensive medical intervention and you’ll get to save some money, too. You’ll get a bonus, too—people who exercise regularly not only feel better, they look better.

The best time to start exercising is yesterday. What are you waiting for?

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COPD Educator Course

The amount of people affected by COPD is growing, and along with it, employment opportunities for those in the COPD Education field. COPD is estimated to become the third leading cause of death in the world by 2020, and one of the ways to combat this debilitating disease is simply to educate yourself about it, which is exactly what the COPD Educator will do.

The COPD Educator course is meant to teach practitioners about the proper assessment, diagnosis and wide array of treatments for COPD. The course’s objectives range from describing the types of pulmonary function testing to being able to select the most appropriate oxygen delivery equipment to meet a patient’s needs, given adequate information about them. It will also enable practitioners to teach their patients about COPD, whether it be helping to prevent it or encouraging them to manage it.
For non-members, the course is priced at $225 but thanks to the early bird special, all American Academy for Respiratory Care members are eligible to register for the low price of $130. After August 1st, the price will rise to $165 for members. Before registering, make sure to have Adobe Flash version 8 or higher installed as well as a sound card and speakers.

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It’s Not Too Late to Sign Up for Free COPD Webinars!

The US COPD Coalition holds a series of quarterly webinars designed to provide COPDers, your families and your providers with timely information on a range of important issues. Even if you can’t attend the webinars in person you can still benefit from the information and interactive discussions that occur.  

The first archived webinar, “I’ve Been Diagnosed with COPD . . . Now What?” is available free of charge on the US COPD Coalition website, www.uscopdcoalition.org. This webinar was conducted in April and features expert advice from Dr. Byron Thomashow on how to live with your diagnosis, and Respiratory Therapist Curt Merriman who discusses the stories two COPDers.

Our spring webinar on COPD public policy issues will be posted and stay tuned for more information on our fall webinar, “Living Healthy with COPD.”

If you would like to be notified of the webinar schedules and other important programs from the US COPD Coalition, visit the US COPD Coalition website calendar at www.copdfoundation.org/news/events.

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COPDF Comments on Federal Document to Address Multiple Chronic Conditions

The Department of Health and Human Services (DHHS) has proposed a Draft Strategic Framework with the goal of reducing the burden of Multiple Chronic Conditions (MCC) in the U.S. and within the Medicare system. 

The COPD Foundation provided comments on the draft, aimed at alerting the DHHS to the increasing burden of COPD, and the impact of multiple chronic conditions on Americans with COPD.
The Draft Strategic Framework on MCC is dedicated to finding innovative ways the federal government can address chronic diseases over a five-year period with news strategies that will include pilot programs.

The draft plan aims to realize optimum health and quality of life for individuals with multiple chronic conditions. Responding to this draft document is one of the many ways the COPD Foundation is reaching out to encourage the federal government to increase it’s recognition and programs dedicted to COPD, diagnosis, treatment and management.

“As our population ages, more and more people struggle with multiple medical issues or multiple chronic conditions as this report suggests. COPD is a prime example. Many folks with COPD tend to have multiple medical conditions ranging from heart disease to osteoporosis, from reflux and arthritis to depression and cancer,” Dr. Byron Thomashow, who is on the COPD Foundation Board of Directors, says. “Most disease guidelines address issues relating only to the specific disease. As we move forward with COPD and other chronic medical diseases, we need to address the whole individual, not just the specific disease.”

The Centers for Disease Control and Prevention (CDC) estimates that over 75 million Americans have two or more chronic conditions.  In 2006, of the over 3,000 COPD patients surveyed, 81 percent reported suffering from six or more conditions affecting their health.

The COPD Foundation’s comments focused on encouraging dissemination of self-management and patient education tools and implementing home based interventions, supporting payment changes that allow more allied health care professionals such as respiratory therapists to be involved in education.  The Foundation also encouraged the government to engage in further research to improve the way individuals with MCC are treated.

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The dissemination of this e-newsletter is supported by Novartis Pharmaceuticals, Inc.


Connect with the COPD Foundation via:

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COPD FOUDNATION The mission of the COPD Foundation is to develop and support programs which improve the quality of life through research, education, early diagnosis and enhanced therapy for persons whose lives are impacted by Chronic Obstructive Pulmonary Disease (COPD).

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#83 From: Em Carroll <nineep@...>
Date: Mon Jul 19, 2010 5:00 pm
Subject: FSR Celebrates new Discovery in Fight Against Sarcoidosis
nineep2000
Send Email Send Email
 

 
 THE FOUNDATION FOR SARCOIDOSIS CELEBRATES NEW DISCOVERY IN FIGHT AGAINST SARCOIDOSIS
>
>> Date: 17 Jul 2010
>
>
>
> Definition of medical terminology for Researchers.Definition of medical terminology for Foundation.Definition of medical terminology for Sarcoidosis.Definition of medical terminology for Lead.Definition of medical terminology for Disease.Definition of medical terminology for Sarcoidosis.Researchers from Johns Hopkins University, funded by the Foundation for Sarcoidosis Research, recently made an important discovery that might soon lead to better treatments for those living the multi-system inflammatory disease sarcoidosis.
>
> Definition of medical terminology for Sarcoidosis.Definition of medical terminology for Serum Amyloid A Protein (SAA).Any of a number of complex proteins that are deposited in tissues and that share selected laboratory features such as a change in the fluorescence intensity of certain aromatic dyes like Congo Red. Definition of medical terminology for Production.Any of a number of complex proteins that are deposited in tissues and that share selected laboratory features such as a change in the fluorescence intensity of certain aromatic dyes like Congo Red. Definition of medical terminology for Inflammation.Definition of medical terminology for Lungs.Definition of medical terminology for Investigator.Definition of medical terminology for School.Definition of medical terminology for Medicine.Definition of medical terminology for Scientific Fraud.Definition of medical terminology for Diagnostic Tests.Definition of medical terminology for Disease.Definition of medical terminology for Inflammation, Brain.Definition of medical terminology for Lead.Definition of medical terminology for Heart.Definition of medical terminology for Lung.Definition of medical terminology for Transplantation.Definition of medical terminology for Investigator.Microbial preparations of killed or modified microorganisms that can stimulate an immune responseDefinition of medical terminology for Serum Albumin.Definition of medical terminology for Research.Definition of medical terminology for Grant.Definition of medical terminology for Research.Definition of medical terminology for Future.Definition of medical terminology for Sarcoidosis.Definition of medical terminology for Research.Definition of medical terminology for Lead.Definition of medical terminology for Sarcoidosis.Definition of medical terminology for Overall.Definition of medical terminology for Research.Definition of medical terminology for Grants.Definition of medical terminology for Support Group.Definition of medical terminology for Research.Definition of medical terminology for Grants.Definition of medical terminology for Researchers.A six-year investigation has revealed a link between sarcoidosis and overproduction of a specific protein trigger called serum amyloid A . a?¶The increase in production of serum amyloid A explains for the first time how inflammation can persist in the lungs without being triggered by an active infection,a?» says study senior investigator and pulmonologist David Moller, MD, a professor at the Johns Hopkins University School of Medicine and member of the FSR Scientific Advisory Board.
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>
>
> Researchers are planning to use these results to create diagnostic tests that could better predict which people with the disease are likely to heal on their own or are more likely to suffer persistent inflammation, which can lead to scarring, difficulty breathing, and heart failure that can only be fixed by lung transplantation. According to lead investigator Edward Chen, MD, the new findings also clear the path for developing drug treatments or vaccines that can block serum amyloid A from binding to cell receptors and kicking off inflammation.
>
>
>
> FSR awarded Dr. Chen, with a $100,000 research grant in 2008. "We are thrilled that FSR`s commitment to research has resulted in a new discovery that will impact the direction of future sarcoidosis research. We hope that this will lead to developments that will benefit sarcoidosis patients everywhere," said Andrea Wilson, co-Founder and President of FSR.
>
>
>
> This breakthrough mirrors the increasing success of the overall research grants program at FSR. In the last five years, FSR has awarded $750,000 to support innovative research projects which has led to an additional $1.2 million in subsequent grants for our researchers. New applications for awards in 2010 are due June 15.
>
>
>
>

#84 From: Em Carroll <nineep@...>
Date: Tue Aug 24, 2010 3:53 pm
Subject: Partnership helps fight lung disease
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Date: Tue, 24 Aug 2010 09:15:06 -0500
Subject: Partnership helps fight lung disease

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American Lung Association: Fighting For AirBank Of America
Bank of America and American Lung Association help fight lung disease
Dear American Lung Supporter,

A few months ago, we told you about our new partnership with Bank of America and how they're assisting the American Lung Association to help eliminate destructive lung diseases and improve the air we breathe. We hope you're as excited about our partnership as we are and want to participate in its success. In case you haven't taken advantage of this great opportunity to assist the Lung Association, we'd like to tell you more about it.

One of the ways Bank of America is supporting us is with its American Lung Association branded debit and checking accounts. Bank of America will contribute to the Lung Association when you open an account. Then, every time you use your debit card to make a purchase, Bank of America will make an additional contribution.

This contribution comes directly from Bank of America, and every dollar will go a long way to help prevent lung disease and improve lung health. From our successful stop-smoking programs to new treatments for lung cancer and asthma, your account with Bank of America supports every aspect of the Lung Association's 106-year-old mission.

As a continuing sponsor of the American Lung Association's efforts, we appreciate everything you do to help sustain our important work. Don't pass up this chance to do even more.

Sincerely,
Jim Gooden, National Volunteer Chair
Jim Gooden
National Volunteer Chair

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#85 From: Em Carroll <nineep@...>
Date: Tue Sep 14, 2010 9:57 pm
Subject: 6th Annual Sarcoidosis Walk for a Cause and Cure Houston Texas!
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October 30, 2010, Houston, Texas/////JSOF 6th Annual Sarcoidosis Walk for a Cause and Cure with Dr Marc A Judson, MD.  He will be available for Q&A's and the latest information on Sarcoidosis Research and clinincal trials..    We will meet you there....www.sarcoidosiswalk.org   www.jsof.org


Marc A. Judson M.D.
 
 
Title:Professor
Degree:M.D. awarded by Vanderbilt University, 1980
Appointment:College of Medicine
Department:Medicine
Address:Pulmonary and Critical Care Medicine
MUSC Rutledge Tower 
Charleston South Carolina 29403
Professional Interest: Sarcoidosis; Bronchoscopy; Aspergillus lung disease
 Medical management of lung transplantation�
 Diseases of the lungs in immunocompromised patients

Emma Carroll, Founder/
Executive Director
832-248-6621

When we are conscious of our personal uniqueness and our universal nature, we express ourselves creatively. In this way we fulfill our dreams and our life purpose."
-- Andrew Schneider .
 
Empowering the Community through Sarcoidosis Education and Outreach



#86 From: Em Carroll <nineep@...>
Date: Fri Oct 15, 2010 10:00 pm
Subject: July-August 2010 ATS PAR News
nineep2000
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From: atsinformation@...
Subject: July-August 2010 ATS PAR News


Message body

Pulmonary Fibrosis Research Enhancement Act Introduced in U.S. Senate

In early August, Senators Patty Murray (D-WA) and Mike Crapo (R-ID) introduced the Pulmonary Fibrosis Research Enhancement Act (PFREA) in the U.S. Senate. If passed, the bill would fund the creation of a national pulmonary fibrosis patient registry, as well as call on the NIH to expand and intensify pulmonary fibrosis research efforts. Read More


Message from the ATS PAR Chair

ATS Public Advisory Roundtable Chair Teresa Barnes talks about how ATS PAR is critical in helping patients with lung disease breathe better. Read More

Trial Investigates Drug Safety & Efficacy

Pharmaxis Ltd. is conducting a clinical trial to investigate the safety and efficacy of inhaled mannitol over 12 months in the treatment of bronchiectasis. Read More

Spotlight on Patients: Jerry Cahill

When Jerry Cahill was first diagnosed with cystic fibrosis in 1967 at the age of 11, his prognosis was dire. Today, at the age of 54, he has proven that CF patients can beat the odds. As a volunteer for the Boomer Esiason Foundation, he works to ensure that exercise and therapy compliance become a way of life for all people with the disease. Read More

Alpha-1 Foundation Promotes Awareness at Cape

In early October, the Alpha-1 Foundation’s Team Alpha-1 “Escaped to the Cape” and again came home a winner. The bicycle team promoted awareness and raised money for research on alpha-1 antitrypsin deficiency during the American Lung Association of Massachusetts’s annual Autumn Bike Trek. Read More

Who’s Who at ATS PAR: Beth Sufian, JD

Beth Sufian, JD, is a lawyer who represents people with chronic health conditions. In 1998, she started the Cystic Fibrosis Foundation Legal Information Hotline, which she now directs. This service provides free information about the laws that protect the rights of patients with the disease. Read More

Organizational Highlights: Cystic Fibrosis Foundation

When the Cystic Fibrosis Foundation was founded in 1955, children with CF were not expected to live long enough to attend elementary school. Due in large part to the Foundation’s aggressive investments in innovative research and comprehensive care, the predicted median survival age for people with this disease is now 37. Read More

Book Aims to Increase Public Awareness

This summer, the ATS published Breathing in America: Diseases, Progress, and Hope, a book that explores the nature and causes of pulmonary, critical care and sleep disorders, their prevalence and burden, the benefits research has brought and the research challenges that remain. ATS PAR had advocated for such a publication, and former ATS PAR Chair Donna Appell, RN, was among those who reviewed the book’s content. Read More

ATS PAR Calendar of Events

This list of upcoming conferences, courses and meetings will help you plan ahead. Read More

ATS and PAR Co-Fund 9 Foundation Research Program Awards

This year, the ATS Public Advisory Roundtable is co-funding nine of the ATS Foundation Research Program’s 11 awards. The Society’s Scientific Advisory Committee reviewed more than 100 applications, ranked them according to scientific merit and awarded grants to these researchers. Read More

ATS Publishes Official Policy Statement on Novel Risk Factors & Global Burden of COPD

The ATS has released an official statement on novel risk factors and the global burden of chronic obstructive pulmonary disease. The statement appeared in the September 1 issue of the American Journal of Respiratory and Critical Care Medicine. Read More

Spotlight on ATS Committees: Patient & Family Education Committee

In this new column, Kathleen Lindell, Ph.D., R.N., chair of the Patient and Family Education Committee, talks about what she and her members are doing to advance the Society’s mission of improving the quality of life of patients with lung diseases, critical illnesses and sleep disorders. Read More

ATS Comments on Health & Human Services Strategic Plan

The ATS recently submitted comments to the Department of Health and Human Services on its strategic plan for advancing the health and well-being of the United States from 2010 to 2015. The Society’s comments respond to many aspects of the plan, beginning with its first objective—making insurance coverage more secure and extend affordable coverage to the uninsured. Read More

ATS Calls for Abstracts & Case Reports

Marc Moss, M.D., chair of the ATS International Conference Committee, invites you to submit scientific abstracts and case reports to the ATS 2011 International Conference, which will be held May 13 to 18 in Denver. Read More

ATS Publishes Joint Statement on Renal Failure in the ICU Patient

The panel of experts who convened at an international consensus conference on the prevention and management of acute renal failure in ICU patients issued a statement that appeared in the May 15 issue of the American Journal of Respiratory and Critical Care Medicine. Read More

New ATS Committee & Assembly Leadership

During the 2010 International Conference, ATS President Dean E. Schraufnagel, M.D., appointed 14 new chairs, three new vice-chairs and two new chair-appointees to lead the Society’s committees over the next year. ATS assemblies also installed new leaders during the meeting: six elected new chairs, who will serve from 2010 to 2012. Read More

HHS REPORT: Steps to Simplify and Streamline Federal HAI Tracking System

At regional meetings sponsored by the U.S. Department of Health and Human Services last summer, hospital infection prevention professionals and state hospital association representatives from across the country suggested ways that the Centers for Disease Control and Prevention’s National Healthcare Safety Network (NHSN) could be made easier for hospitals to use. Read More

ATS to Promote Lung Awareness, on World Spirometry Day

As part of the “2010 Year of the Lung” campaign, the ATS and other members of the Forum for International Respiratory Societies recognized October 14 as “World Spirometry Day” by promoting the diagnosis of lung conditions, encouraging people to get their lungs tested and raising awareness about lung health. Read More

ATS Officers Meet with NIH Leaders to Discuss Collaboration

In late June, ATS President Dean E. Schraufnagel, M.D. and the other members of the executive committee met with administrators, directors and senior staff from 10 NIH institutes to discuss common objectives and opportunities for collaboration. Read More

Obituary: John M. Peters, M.D.

John M. Peters, M.D., the Hastings Professor of Preventive Medicine at the University of Southern California's Keck School of Medicine and a renowned authority on the effects of air pollution on health, died of pancreatic cancer May 6. He was 75. Read More

AJRCCM Number One in Specialty Journals

The American Journal of Respiratory and Critical Care Medicine's impact factor for 2009 was 10.689, up from 9.79 in 2008, according to the recently released Journal Citation Report. This makes the Society's "blue journal" the highest-ranked journal in respiratory and critical care, immunology and allergy, asthma and sleep medicine. Read More

Save the Date: ATS 2011 in Denver, May 13-18

Mark your calendars: the ATS 2011 International Conference will take place at the base of the Rocky Mountains in Denver, Colorado, May 13 to 18. While Denver is famous for snow skiing, the capital of Colorado also boasts 300 days of sunshine a year. Read More

BRIEFLY NOTED

Share the ATS PAR News with Colleagues! Read More
Help Build the Society’s Future Read More
ATS Staff News Read More
Save the Date for ATS PAR Planning Committee Meeting Read More
ATS Letters to the NIH Read More
About ATS PAR Read More
Mark Your Calendars for ATS 2012 in San Francisco Read More
Best of ATS 2010 Webcasts Now Available Read More
Concierge Service Now Available Read More
ATS Member News Read More
ERS Global Lungs Initiative Read More
Human Resources Director Retires Read More
ATS Introduces New Chapter/Member Services Director Read More
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#87 From: Em Carroll <nineep@...>
Date: Tue Oct 19, 2010 1:35 am
Subject: Protect Yourself this Flu Season
nineep2000
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Date: Mon, 18 Oct 2010 12:00:38 -0500
Subject: Protect Yourself this Flu Season

Message body
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ARE YOU AT RISK?  |  DID YOU KNOW?  |  GET IMMUNIZED  |  TELL SOMEONE
We All Are "Faces" of Influenza
You can take action to protect yourself and your family. Find a flu clinic in your neighborhood at our Flu Vaccine Finder and get you and everyone in your family vaccinated now. Annual flu shots are recommended for everyone six months of age and older, especially those with chronic illnesses and their caregivers.
The 2010–2011 seasonal influenza vaccine includes the 2009 pandemic H1N1 influenza strain, so unlike last year when two vaccines were required, only one influenza vaccine is needed this season. Everyone is a "face" of influenza. Consider their stories:
Amie and Cailey Welch, mother and daughter, are still dealing with complications related to their experiences with influenza. While Mom Amie was already in the hospital with the flu, Cailey was even sicker, spending six months on a ventilator. Even now, Cailey lives with a tracheostomy and relies on oxygen to help her breathe. "You have to take it seriously; this isn't a cold. It can happen to anyone."
Lisa Amoroso, a wife and mother of two healthy children, thought she only had a cold, but her doctor immediately rushed her to the emergency room where she was placed into a medically-induced coma to save her life. This once-active mom had to relearn how to walk and even hold a spoon. "I figured if I got sick I could fight it," Lisa said of her experience.
Rebecca and Nicolaas Wooters both have asthma, a risk factor for developing complications from the flu. After losing both a cousin and friend last year to the disease, Rebecca resolved to have her family vaccinated. "Influenza is not worth the risk. Knowing what I know, I urge other families to take control."
Learn more about influenza and read more stories at www.LungUSA.org or www.FacesofInfluenza.org; then schedule that flu shot. It's the best idea you'll have all year.
  In good health,
Jim Gooden, National Volunteer Chair
Jim Gooden
National Volunteer Chair
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#88 From: Em Carroll <nineep@...>
Date: Wed Nov 3, 2010 3:33 pm
Subject: Sarcoid Walk blogs and photos
nineep2000
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 Check us out . . . the JSOF Sarcoidosis Walk for a Cure was featured on Houston's Channel 2 News and written about on Mary Benton's Blog: http://2onthebeat.wordpress.com/2010/10/31/saving-lives-and-raising-awareness-ab out-sarcoidosis/#comment-1792
 

If you are on facebook there are a lot of photos posted by those who were there>  I am www.facebook.com/sarcoidosis



Emma Carroll, Founder/
Executive Director
832-248-6621

When we are conscious of our personal uniqueness and our universal nature, we express ourselves creatively. In this way we fulfill our dreams and our life purpose."
-- Andrew Schneider .
 
Empowering the Community through Sarcoidosis Education and Outreach



#89 From: Em Carroll <nineep@...>
Date: Wed Nov 10, 2010 5:08 pm
Subject: Fighting For Air Online -- November 2010
nineep2000
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Subject: Fighting For Air Online -- November 2010

Message body
American Lung Association - Fighting for Air Online
November 2010   Print  |  Email Us
Lung Cancer and COPD - Raising Awareness This November Lung Cancer and COPD—Raising Awareness this November
It may be no coincidence that November is both Lung Cancer Awareness Month and COPD Awareness Month. Lung Cancer and COPD (chronic obstructive pulmonary disease) are two of the leading causes of death in America—and also among the most underappreciated. This November, the American Lung Association is shining a spotlight on these two deadly diseases.  » More


Christmas Seals®—A Lifesaving Holiday Tradition
Can a little paper stamp help save lives? Christmas Seals® have been doing it for more than 100 years! When you buy Christmas Seals, you help the American Lung Association save lives by fighting for healthy air and healthy lungs.  » More
Avoiding Autumn Asthma Triggers
The fall season can also expose people with asthma to unexpected triggers that may make their asthma worse. The American Lung Association has a few tips on how to make your fall activities more asthma-friendly.  » More
More Lung Association News
In The News
shutterfly American Lung Association Celebrates the Holidays with Shutterfly’s “Support-A-Cause” Holiday Cards
The American Lung Association is partnering again with Shutterfly, Inc., the leading Internet-based social expression and personal publishing service, on its collection of “Support-A-Cause” holiday cards this holiday season. The Lung Association will receive ten percent of Shutterfly proceeds from the sale of its “Support-A-Cause” cards. » Learn More
 
In This Issue...
Lung Cancer and COPD—Raising Awareness this November

Christmas Seals®
A Lifesaving Holiday Tradition


Avoiding Autumn Asthma Triggers

More Headlines

 
Support the Lung Association with Bank of America Products
 
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Your everyday purchases can help raise funds to support the Lung Association’s research, education and advocacy efforts. With the American Lung Association Visa® credit card, checking account and debit card, you can help change the lives of people affected by lung disease. In addition, every time you use your credit or debit card to make a purchase, Bank of America will contribute a percentage to the Lung Association. Click here for more information and to open an account.
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#90 From: Em Carroll <nineep@...>
Date: Thu Nov 11, 2010 1:41 pm
Subject: Sarcoid Article
nineep2000
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Attached is an article on Sarcoidosis from Breathing in America: Diseases, Progress and Hope, edited by Dr. Dean E. Schraufnagel, published by the American Thoracic Society (www.thoracic.org).   I received a complimentary copy of the book from FSR.

"Read the article.  It is the most current summary about Sarcoidosis."
 Dr Eddie Glenn Bryant of Sarcoidosis of the Midlands, 
 

Emma Carroll, Founder/
Executive Director
832-248-6621

When we are conscious of our personal uniqueness and our universal nature, we express ourselves creatively. In this way we fulfill our dreams and our life purpose."
-- Andrew Schneider .
 
Empowering the Community through Sarcoidosis Education and Outreach



1 of 1 File(s)


#91 From: Em Carroll <nineep@...>
Date: Sat Nov 13, 2010 6:45 pm
Subject: Group Meeting for November 17, 2010
nineep2000
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> Subject: Group Meeting for November 17, 2010
>
> Dear Group Members,
>
> Here are the details for the meeting scheduled for November 17, 2010.
> I hope to see all of you there.
>
> Thanks,
> --
> Rodney K. Reese
> Group Leader
> Sarcoidosis Awareness Support Group of Greater Baton Rouge

1 of 1 File(s)


#92 From: Em Carroll <nineep@...>
Date: Mon Nov 29, 2010 4:38 pm
Subject: NIH Highlights and Headlines 11-29-10
nineep2000
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NIH Highlights & Headlines

Weekly media tip sheet of health research, discoveries, and science

 

Dateline: Monday, November 29th, 2010

  Item dates are as accurate as possible as of today.

 

Coming this week:

Week of 11/29 – A new study about young women with a menopause-like condition at risk for depression

Monday, 11/29 – Information about weight-loss studies using social media

Monday, 11/29 – NIH statement on World AIDS Day

Thursday, 12/2 – Information about a new study on prion diseases

More news and events: www.nih.gov/news/

 

Audio* highlights:

Tuesday, 11/30 – Researchers discover key mutation in acute myeloid leukemia audio report: Researcher explains how a gene may lead to treatment changes in acute myeloid leukemia

 

More resources:

NIH Photo Galleries – http://www.nih.gov/about/nihphotos.htm

Health Information – http://health.nih.gov/ & http://www.nlm.nih.gov/medlineplus/



#93 From: Em Carroll <nineep@...>
Date: Sat Dec 18, 2010 3:47 pm
Subject: FSR build a sarcoidosis doctor directory
nineep2000
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Stop Sarcoidosis Inspire


Dear ecarol,

"How can I find a doctor?" is a question often posted in the Stop Sarcoidosis Support Community.

With so many depending on us for hope and support, we sought your input to find a solution. As a result, FSR is developing an online directory to help people find local doctors who can diagnose their sarcoidosis and address specific medical needs. This directory will feature a rating system that will allow visitors to provide feedback about physicians, helping others who are looking for new physicians.

If you would like us to invite your physician to be listed in the directory, please send his or her contact information to doctorfinder@....

Thank you for being an important part of FSR! We wish you a holiday season filled with peace, comfort and joy.

Sincerely,

Debbie Durrer
Executive Director
Your Inspire message preferences · Send these to my Inspire inbox · Unsubscribe · Help

#94 From: Em Carroll <nineep@...>
Date: Sun Jan 9, 2011 6:08 pm
Subject: FW: We are grateful for your support
nineep2000
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» View in a web browser
» Add American Lung Association to Your Address Book
American Lung Association

Thank You and Happy New Year!

We'd like to thank you for being such an important part of the American Lung Association in 2010. With your help and participation we've been able to make great strides, and together, we continue our Fight for Air in 2011.

     • Know Someone Who Plans to Quit Smoking in 2011?
       Read Our 7 Tips for Success

     • Making the Personal Pledge to Maintain an Exercise Regimen?
       Don’t Let Exercise-Induced Asthma Keep You Sidelined

     • Interested in Press Releases and Publications?
       Visit Our Pressroom
 
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  11 Biggest Clean Air Events of 2010 Eleven Biggest Clean Air Events of 2010
One of them marks the 40th anniversary of the Clean Air Act. This historic law has helped protect the lives and health of all Americans.

LEARN MORE >

  Send an email to the FDA Tell the FDA to Choose Strong Warning Labels for Cigarettes
We need your help! Send a letter to the FDA and let them know how important it is to use strong graphics that have a real impact.

LEARN MORE >
 
 
             
  Freedom From Smoking Online Freedom from Smoking Online®
Know someone who wants to quit smoking? Be sure to let them know about Freedom from Smoking Online.

LEARN MORE >

  50% Off All Christmas Seals Merchandise 50% Off All Christmas Seals Merchandise
Take advantage of our post-Christmas Sale, visit www.christmasseals.org

LEARN MORE >
 
         
Happy New Year,
Jim Gooden, National Volunteer Chair
Jim Gooden
National Volunteer Chair


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American Lung Association :: Fighting for AirForward to a Friend




#95 From: Em Carroll <nineep@...>
Date: Sun Jan 9, 2011 6:16 pm
Subject: Dr. Oz's Live Better Newsletter
nineep2000
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Subject: Dr. Oz's Live Better Newsletter

The Dr. Oz show: The Live Better Newsletter
Join Dr. Oz's Move It and Lose It in 2011, a free 11-week fitness program that will change your life!
New wisdom for the new year: Dr. Oz shares over-40 metabolism boosters to help you stay slim.
Live longer, fight cancer and protect your heart. Dr. Oz lists the top 5 supplements to take in 2011.
Photo  
Dr. Oz's Weekly Health Tip
Get a Customized Health Plan for the New Year

The time to get healthy is now! Identify your goals and get a Dr. Oz-designed step-by-step program based on what you want to achieve.
Learn how to get healthy and stay motivated.

Featured Videos
Move It or Lose It 2011
Move It and Lose It!
Best for Weight Loss
Best Weight-Loss Tips
Foods for Better Health
Foods for Better Health
Dr. Oz's 7-Minute Workout Dr. Oz's 7-Minute Workout
Your Questions Answered
How can I set smart weight-loss goals?

Be realistic. Weight-loss experts recommend losing weight at a pace of about 2 pounds a month: 7,500 calories a month or just 1,875 calories a week.More

See more questions powered by ?
Expert Advice
Quit Now: Don't Let 2011 Go Up in Smoke

In addition to the effects smoking has on the lungs and heart, there are a number of obstetric and gynecologic problems that many women are not aware of.More

Read more from Lauren Streicher, MD.
 
  Photo  
This Week's Recipe
Doctor's Orders: Cook for Better Health Eating healthy can be delicious. Give your kitchen a makeover. Try a few new recipes and change the way you and your family dine.
See Dr. Oz's favorite recipes.
 
Featured Articles
 
Dynamic Food Duos Your 5 Lifesaving Numbers To begin taking charge of your own health, there are 5 crucial numbers Dr. Oz wants you to know.
 
When to Go Organic Dr. Oz's Longevity Grocery List Prevention and a longer, fuller life are in your hands. Fight disease and revitalize your body.
 
Alternative Health 101 The Anti-Cancer Diet Turn your grocery store's produce department into your anti-cancer arsenal.
VSP Contest
 
Coming Up On Dr. Oz!
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TODAY 01/03

Move It and Lose It: Learn how to get your customized 11-week fitness program.
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TUESDAY 01/04

How healthy are you? Dr. Oz asks you the questions that could change your life.
Photo

WEDNESDAY 01/05

Deepak Chopra shares his revolutionary health secrets. Tune in.
Featured Health Challenge
Photo Ultimate Health Challenge

Put an end to your bad habits and adopt healthy new ones. Dedicate yourself to a healthy lifestyle and discover how good it feels to live well.

 
 


#96 From: Em Carroll <nineep@...>
Date: Fri Feb 18, 2011 5:38 pm
Subject: January - February ATS PAR News
nineep2000
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Subject: January - February ATS PAR News
To: nineep@...

Download the January-February issue

ATS 2011: Where Today’s Science Meets Tomorrow’s Care

In March 2011, the ATS Public Advisory Roundtable (ATS PAR) will turn 10 years old. To celebrate this milestone, ATS PAR will sponsor a number of events at this year’s International Conference and its activities will have a decidedly celebratory flair.

Message from the ATS PAR Chair

ATS Public Advisory Roundtable Chair Teresa Barnes talks about PAR’s “Lung Disease Week at the ATS” initiative and how it will highlight the impact and seriousness of lung disease in America.

PAR Launches ‘Lung Disease Week at ATS’

On January 30, 2011, ATS PAR launched a new program called “Lung Disease Week at the ATS,” a series of 14 one-week observances throughout the year that will recognize specific pulmonary, critical care and sleep disorders.

Spotlight on Patients: Rodney K. Reese

Rodney K. Reese, 54, was diagnosed with sarcoidosis in 2000, after working for years as a chemical plant process operator.

Office Visits: ‘I Need to Do My Part’

In this new column, patients talk about their experiences while visiting doctors’ offices and offer their advice and insight about how to make these visits more efficient and less stressful.

ATS PAR Calendar of Events

This list of upcoming conferences, courses and meetings will help you plan ahead.

Who’s Who at ATS PAR: Josephine Grima, PhD

Josephine Grima, PhD, has focused on research and legislative affairs since joining the National Marfan Foundation in 2001. Marfan syndrome is a potentially fatal connective tissue disorder that affects about one in 5,000 people.

Organizational Highlights: National Marfan Foundation

Founded in 1981, the National Marfan Foundation is dedicated to improving the quality of life for individuals and families affected by Marfan syndrome and related disorders.

New Opportunities for Networking at ATS 2011

This year, ATS International Conference attendees will have two new and engaging tools to help them connect: “My ATS 2011” and alumni and group meeting lounges.

New ATS Statement on Pulmonary Fungal Infection

The ATS has released a new official clinical policy statement on the treatment of fungal infections in adult pulmonary and critical care patients. The statement replaces ATS guidelines published in 1988, and takes into account new medications and treatment approaches, while also providing an overview of emerging fungi.

U.S. Healthcare Reform & What It Means for You

P4P, patient-centered medical homes, cost containment and the relationship between health insurance status and critical care outcomes are among the topics that will be discussed during a timely scientific symposium on U.S. healthcare reform during ATS 2011.

High Science: Colorado, Everest & Beyond

Peter Hackett, MD, an internationally recognized expert in altitude medicine, will give the opening address at ATS 2011. In 1981, Dr. Hackett, who is also a mountain climber, became the first person to climb alone from Mt. Everest’s high camp to its summit and survive.

Spotlight on ATS Committees: Environmental Health Policy Committee

In this column, Kent E. Pinkerton, PhD, talks about the scientific and regulatory issues that the Environmental Health Policy Committee is addressing. The Committee works to protect public health and improve the quality of life of lung disease patients by disseminating scientific knowledge and biologic plausibility.

EPA Seeks Delay in Ozone Rule

For the third time this year, the Environmental Protection Agency announced that it was seeking a six-month delay in issuing final rules for the National Ambient Air Quality Standard (NAAQS) for ozone. The announced delay was met with concern and opposition on the part of clean air advocates.

YOL Patient Education Series to be Published Online

As part of the “2010 Year of the Lung” initiative to raise awareness about lung disease, the Society’s 13 assemblies and three sections are each producing a document designed to impart patient-friendly advice related to their respective areas of expertise in pulmonary, critical care and sleep medicine.

ATS Funds Diverse Range of Assembly & Committee Projects

During 2011, all 13 of the Society’s assemblies and three of its committees will work on a broad range of new and ongoing projects aimed at improving the diagnosis, treatment and prevention of respiratory, critical care and sleep disorders. This year, the ATS will support 10 new projects, as well as 31 existing initiatives.

ATS Represented at 7th ISRD

In October, ATS President Dean E. Schraufnagel, MD, and ATS Executive Director Stephen C. Crane, PhD, MPH, traveled to Shanghai, China, to represent the ATS at the 7th Symposium on Respiratory Diseases. While there, they talked with colleagues about the success of the “2010 Year of the Lung” campaign.

16th Annual MECOR Course Held in Latin America

In early November, the ATS and Asociacion Latinoamericana del Torax (ALAT) jointly sponsored the 16th annual Methods in Epidemiology, Clinical and Operations Research (MECOR) course at the Pontificia Universidad Javeriana in Bogotá, Colombia.

ATS Endorses CMSS Code on Interaction with Companies

In late October, the ATS Board of Directors voted to endorse a comprehensive set of guidelines developed by the Council of Medical Specialty Societies to foster appropriate interactions between specialty societies and for-profit companies.

Board Approves Changes to Tobacco Policy & COI Procedures

At its meeting in late September, the ATS Board of Directors approved several significant changes to its policies on involvement with the tobacco industry and the management of other conflicts of interest.

ATS Leads Effort to Increase Global TB Funding

In October, representatives from the ATS government relations office met with staff members from the White House Office of Budget and Management to discuss the importance of funding tuberculosis prevention and control efforts in the U.S. and beyond.

What’s New at ATS 2011?

The ATS has made a number of changes to its International Conference—both to maximize the content of the meeting and the learning that takes place and to facilitate networking, which is one of the main reasons why so many people attend the conference every year. Don’t miss these notable new or recent additions.

BRIEFLY NOTED

New AJRCCM Podcasts Focus on Improving Care & Mentorship
ATS Announces Recipient of Tobacco-Dependence Award
What’s New in the ATS Journals
Share the ATS PAR News with Colleagues!
About ATS PAR
The ATS Acknowledges its 2010 Corporate Members
ATS-APSR Young Investigators Present Research in the Philippines
Go Online to Read Back Issues of the ATS PAR News
COPD Foundation Partners with DRIVE4COPD Campaign to Raise Awareness
Save the Date: 3rd Annual ATS Foundation Research Dinner, May 14, 2011
61 Broadway · New York, NY 10006-2755 · Voice: 212-315-8600 · Fax: 212-315-6498
Copyright © 2011 American Thoracic Society



Informz for iMIS

#97 From: Em Carroll <nineep@...>
Date: Tue Oct 18, 2011 10:10 pm
Subject: SUPPORT more aggressive SARCOIDOSIS RESEARCH, add SARCOIDOSIS & it's Complications to SSA Compassionate Allowance List! has been published!
nineep2000
Send Email Send Email
 
 
Dear friends,

I wanted to let you know about a new petition I created on We the People, a 
new feature on WhiteHouse.gov, and ask for your support. Will you add your 
name to mine?  If this petition gets 25,000 signatures by November 13, 2011, 
the White House will review it and respond!

We the People allows anyone to create and sign petitions asking the Obama 
Administration to take action on a range of issues.  If a petition gets 
enough support, the Obama Administration will issue an official response.

You can view and sign the petition here:

http://wh.gov/2oq  (THIS IS NOT SPAM)

Here's some more information about this petition:

SUPPORT more aggressive SARCOIDOSIS RESEARCH, add SARCOIDOSIS & it's 
Complications to SSA Compassionate Allowance List!
Why Sarcoidosis Research and Awareness is Important!

There are three very important elements to making strides with Sarcoidosis:

#1: Awareness, #2: Education, the last but most important is #3: Sarcoidosis 
Research

Even though over recent years some progress has been made in recognizing 
various symptoms of Sarcoidosis it is evident that there is still a great 
need to obtain more information about this disease in order for doctors to 
become better equipped at diagnosing Sarcoidosis.

Due to this overwhelming lack of medical knowledge about Sarcoidosis that 
exists, the true number of people who are affected by this disease and the 
origin or cause of Sarcoidosis will continue to be a mystery!
It is very dibilitating and often fatal!
 
Please post this statement in your status on Facebook and Twitter
 
I just started a petition on the White House petitions site, We the People.  
Will you sign it? http://wh.gov/2oq    (This is Not Spam)
 
Thank you
Emma




#98 From: Em Carroll <nineep@...>
Date: Fri Dec 23, 2011 6:36 pm
Subject: Merry Christmas!
nineep2000
Send Email Send Email
 
 

Merry Christmas to all.  May God bless and keep you in the coming year 2012.  Let us get ready to try and make a difference again as we promote Sarcoidosis Awareness, Education and Research.....
 
APRIL 2012 IS SARCOIDOSIS AWARENESS MONTH!  LET US BEGAN PLANNING EVENTS AND ACTIVITIES IN EVERY CITY, STATE AND PROVIDENCE!


 
 


 

Emma Carroll, Founder
Executive Director, JSOF
832-248-6621  
Donations help support Sarcoidosis Education and Research
please donate today - http://www.jsof.org/donate     

When we are conscious of our personal uniqueness and our universal nature, we express ourselves creatively. In this way we fulfill our dreams and our life purpose."            -- Andrew Schneider 


#99 From: Em Carroll <nineep@...>
Date: Sat Jan 7, 2012 8:04 pm
Subject: April Sarcoidosis Awareness Month Walk for a Cure!
nineep2000
Send Email Send Email
 

PLEASE SAVE THE DATE, APRIL 21, 2012

 

and joins us at the JCC , 5601 S Braeswood

 Houston Tx 77096,

as we Walk to promote Sarcoidosis Awareness, Education and Research!

JSOF 8th Annual Sarcoidosis Awareness Walk for a Cure!

Registration $10.00 - http://www.jsof.org/donate

Teams are welcomed and encourged (pledge sheets attached)

Sarcoidosis@...

PO Box 1008 - Alief, TX 77411

"Empowering Communities through Sarcoidosis Education and Outreach"



Emma Carroll, 
Executive Director, JSOF
832-248-6621  
Donations help support Sarcoidosis Education and Research
please donate today - http://www.jsof.org/donate     

When we are conscious of our personal uniqueness and our universal nature, we express ourselves creatively. In this way we fulfill our dreams and our life purpose."            -- Andrew Schneider 


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