... Hi, I got FAP and the J-pouch. Have had the J-pouch for over 20 yrs. Sorry I have no experience with midway bleeds. Scare bleeds are very common and...
Hi Everyone, I have not posted anything in a long time but I am once again frustrated about having pouchitis most of the time when I do not take Cipro. My...
How does anyone deal with feeling nausea from taking Flagyl & Cipro? I keep throwing it up 2 hrs after taking it. Tried everything to keep it down. If I hear...
I dig after chronic pouchitis and a major bleed along with being so raw I could barely walk . I went back to eleostomy ,could not be happier able to eat...
Kim I just read your text from last summer and am wondering how your son is doing? My son is almost 18 and we are being forced to look seriously at surgery....
... (snip) Funny how things are, but not funny Ha-Ha. I have had a pouch for three years, and have suffered with Pouchitis and also urgencies if you know what...
wow ! Great for you . ... From: wdal69 <wdal@...> Subject: [Jpouch] Re: Chronic Pouchitis To: Jpouch@yahoogroups.com Date: Saturday, April 25, 2009, 7:53...
... Ben I hope you are still reading and posting on here. I just found your post today. 20 years is wonderful! My husband is 13yrs and there is 'talk' again...
Hello, has anyone here lost their j-pouch and had to have it replaced with either an internal or external ostomy? Would you share your experience, advice, etc...
... My husband had his first bout w/ pouchitis a yr ago and there is debate among doctors whether it is chronic now or just showing up again (and again). He's...
... You have the external bag now (or ?again) instead of the internal pouch? My husband may have to have this as well, but is very, very upset about the...
... Did anyone else feel as hopeless as I do? I love to have control of everything and unfortuately I have NO control over this situation. I want to be 300%...
Meghan, Please don't do surgery until you seek the best advise. I forgot to tell you I am 41 yars old and I have 2 small daughters. I didn't want to live with...
Meghan, I have had a total of 3 take downs and right now have no ileostomy. If not fo the Cleveland Clinic I would still have an ileostomy. I live in Illinois...
Trent has UC and was diagnosed in 05. We have tried all meds and nothing has held the flares off for more that 6-9 mo. I truly believe stress has alot to do...
It's always Cleveland Clinic -I cant' tell you how many times and for how many different medical issues we've wanted to go there in the past 2+ years -for all...
I have had my j-pouch since i was 26 in 2001. i am doing great and am so grateful that i did it. i tried every medication that was out during that time...
Wendy, Â Have you tried the Cleveland Clinic. I was told by my doctor's in St. Louis the only solution was a permanent ostomy. I refused to accept this and I...
I have had my j-pouch since 1999, early problems with ileostomy with terrible infection around stoma,had that for 11 mo.at that time was a Steamfitter so was...
Hello all. I am new to the site. But have lived with my J-Pouch since 1998/99. It has been a dream come true for me, lol. I have noticed I do have a problem...
... If you have any advice please share and I will help with whatever I can. Thanks in advance. Cheryl Hi Cheryl, I'm Meghan, wife to Russ who has had a...
Hi All, I am 22. I was diagnosed with Ulcerative Colitis when I was 17. This summer I had a colectomy and j-pouch construction surgery. The take-down of my...
HI , I am not a fan of the j-pouch and after many complications went back to The ileostomy , but I am 50 Y.O. Not really interested in much of a social life ....
Hi Sharon, I was 21 when diagnosed and 26 when I had the surgeries. Now I am 35, married, with two very active kids, and recently gave up a very stressful...
Sharon, I know life seems bleak to say the least at this stage. However I can tell you that for me and many others it did get better, and will for you as well....
I cant remember his email (and neither does my yahoo seem to), but he had a new jpouch and was having alot of pain with it and I have some info that might...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
