I think your doc is absolutely right, based on my experience and what I have read. Ara-C is not important in most cases--the combination of an anthracycline...
My understanding is that there are several different protocols being used for treatment of APL. There is one protocol that requires 1 year of maintenance on...
my daughter was in remission for 3 1/2 yrs when her APML came back. She had an autologous stem cell transplant and has been in remission for over 5 years. I...
Im almost five years remission too - I still get a B12 shot every month - it REALLY helps with the low energy !!  Just ask your doc !!  Cristen ... ...
Hi,  My name is Deb. I was diagnosed 2 weeks ago with APL Leukemia. I have finished the IV chemo and am taking the pill form every day. I'm supposed to...
Deb, Sorry to hear about the diagnosis - but, as you may know, APL is one of the most treatable forms of leukaemia. I was diagnosed over 3 years ago, treated...
First of all, be positive. That is how we made it thru our hardships. The first three weeks will be intensive but educational. Talk with your nurses, they will...
One more story. I had a tear in the tissue in my knee and was scheduled for surgery. I went in the day before for blood work and the knee surgeon called me...
Hi, I am currently undertaking research as part of an MSc degree within the Institute of Work, Health & Organisations (I-WHO), which is a postgraduate...
Patt, sorry to hear about your daughters relapse but glad that she is all fine now. Diane, thanks for your reply. I'll probably check with my doc again...
Sands - In response to your questions (to the best of my understanding) 1) The best understanding that I have is that the treatments "restart" our marrow,...
Yes, my understanding is that the chemo kills the APL cells in the bone marrow that give rise to the malignant promyelocytes, and that's why chemo drugs that...
My nephew went to the hospital Tuesday with a nose bleed. He was transfered to another hospital on Tuesday with possible leukemia. They told us at that...
This is devastating--it sounds like your nephew's case of APL was quite advanced before it was diagnosed. But if he can survive the next week or so, he still...
I gave blood to Red Cross in December and was fine. Three weeks later, I was diagnosed with APL and that due to my blood count being at 1500, I would have...
Thank you for your reply. There seems to be little change. They said that he is having mini strokes and getting aggitated. They have put a limit of only...
A bone marrow transplant is not usually done for APL unless there is a relapse, because the cure rate is so high with drug treatment alone. They should be...
I am so sorry to hear about your nephew. DIC is a nasty condition associated with APL. While I don't understand it from a medical standpoint, I know that it...
The turn round came yesterday. He is off the vent and talking they are getting him some food. He is being transferred out of the micu and to the cancer center...
That's very good news! I'm quite relieved to hear it. Thanks for letting us know, and please keep us posted about his further progress. Jeanne ... From: TINA...
Hello I was wondering how long it took your daughter to recove afte her stem cell transplant. I had a autologous stem cell transplant in Dec 08 and I still...
Hello to all in the group, I was diagnosed August 2008. My APL was caused by treatmnet for breast cancer. I was given Ara-C and Dannorubicin during my first...
My daughter is a trooper...she never complained, so I don't really know how long it took. By not fully recovered, what do you mean? Are you still feeling...
They didn't get to transfer him because, his blood pressure. Is that a common. I read that apl is acquired not inherited. Can you tell me what are some causes...
I don't know how common it is to have high blood pressure under these conditions, but if it is related to APL or its treatment, it shouldn't last long. I...
I just wanted to share with everyone that today marks the 1 year anniversary of my stem cell transplant! I was very lucky that I had a 100% match from someone...
My oncologist says my platelet count is low (18 thousand) He doesn't think it's the APL coming back, the PML RA/RA test came back negative. Since I am doing...
I don't blame you for being scared---the scariest thing is usually the unknown, and it's really hard to know what's going on here. It's probably not APL...
Hi Jeanne, thanks for the info! I've been poking around & found something about hemo-dialysis having an effect on platelets. Something to talk about with my...
Hi DJ, You definitely sound more relaxed and less frightened now, so that makes me feel better, too. You've been through so much already, and I wanted to...
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