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TalkHHD
502 Members,
Archives:
Membership required
This group is dedicated to the mutual support and encouragement of those suffering with Hailey Hailey Disease (Chronic Benign Familial Pemphigus) and their friends and...
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EBzone
342 Members,
Archives:
Membership required
Welcome to the EBzone! Formerly known as 'EBworld', EBzone is the largest and oldest mailing list for the EB community! This list is made to bring Epidermolysis Bullosa...
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rosacea-diet-users-support-group
Check out the new Rosaceans Blog Rosacea 101: Includes the Rosacea Diet | Free Preview of the Rosacea Diet If you wish to join, purchase of the Rosacea Diet book is...
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EBsimplex
211 Members,
Archives:
Membership required
The term 'Epidermolysis Bullosa' encompasses a group of blistering skin diseases for which there is no cure and few treatment options. This list is intended to provide an open forum ...( more)
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morgellons_bayarea
198 Members,
Archives:
Membership required
A pro-active support group for bay area residents suffering from Morgellons Disease (bay area rap group).
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ebdatabase
139 Members,
Archives:
Membership required
Epidermolysis Bullosa is a rare condition, and Drs are not always free to give out information about other parents or patients in the area or anywhere that might help because of ...( more)
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nevus_support_australia
A site dedicated to individuals and families affected by Congenital Melanocytic Naevus (CMN). A Congenital Melanocytic Naevus (spelt Nevus or...
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ebpep
70 Members,
Archives:
Membership required
This group is generally for parents who do not have epidermolysis bullosa but who do have a child or children with this rare skin disorder. EB free parents who have children with this ...( more)
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HaileyHaileyDisease
50 Members,
Archives:
Membership required
This group is dedicated to and in the assistance, education and support, by the dissemination of information using all available media means, of anyone and everyone who suffers from ...( more)
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IncontinentiaPigmentiSupport
16 Members,
Archives:
Membership required
After an endless search for support groups for families with loved ones affected with IP I decided to start a group. I am affected by this genetic disorder, my daughter has it and we ...( more)
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