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TalkHHD
479 Members,
Archives:
Membership required
This group is dedicated to the mutual support and encouragement of those suffering with Hailey Hailey Disease (Chronic Benign Familial Pemphigus) and their friends and
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EBzone
348 Members,
Archives:
Membership required
Welcome to the EBzone! Formerly known as 'EBworld', EBzone is the largest and oldest mailing list for the EB community! This list is made to bring Epidermolysis Bullosa
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rosacea-diet-users-support-group
Check out the new Rosaceans Blog Rosacea 101: Includes the Rosacea Diet | Free Preview of the Rosacea Diet If you wish to join, purchase of the Rosacea Diet book is optional to join ...( more)
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EBsimplex
206 Members,
Archives:
Membership required
The term 'Epidermolysis Bullosa' encompasses a group of blistering skin diseases for which there is no cure and few treatment options. This list is
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morgellons_bayarea
190 Members,
Archives:
Membership required
A pro-active support group for bay area residents suffering from Morgellons Disease (bay area rap group).
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ebdatabase
142 Members,
Archives:
Membership required
Epidermolysis Bullosa is a rare condition, and Drs are not always free to give out information about other parents or patients in the area or anywhere that might help because of ...( more)
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nevus_support_australia
A site dedicated to individuals and families affected by Congenital Melanocytic Naevus (CMN). A Congenital Melanocytic Naevus (spelt Nevus or Naevus) is a skin
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ebpep
71 Members,
Archives:
Membership required
This group is generally for parents who do not have epidermolysis bullosa but who do have a child or children with this rare skin disorder. EB free parents who have children with this
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HaileyHaileyDisease
53 Members,
Archives:
Membership required
This group is dedicated to and in the assistance, education and support, by the dissemination of information using all available media means, of anyone and everyone who
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IncontinentiaPigmentiSupport
16 Members,
Archives:
Membership required
After an endless search for support groups for families with loved ones affected with IP I decided to start a group. I am affected by this genetic
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