| 1 |
ClubRett
460 Members,
Archives:
Membership required
Our Mailing List is for ADULTS who have a Rett Syndrome Angel in their life. It is a place to share ANYTHING you want to talk about. (And we DO talk about anything) If you have problems ...( more)
|
|
| 2 |
RettSyndromeParents
207 Members,
Archives:
Membership required
A place for Rett Syndrome Parents to talk about- discuss and share thoughts- idea's and questions about Rett Syndrome.
|
|
| 3 |
ANZACRett
46 Members,
Archives:
Membership required
This group has been created for families, caregivers, friends etc who have children/adults affected by Rett Syndrome in Australia and New Zealand. However families from anywhere in the ...( more)
|
|
| 4 |
CDKL5
This group is for parents, family members and friends of those affected by CDKL5 / STK9 to share their stories and experiences and to offer support to each other. This genetic change ...( more)
|
|
| 5 |
rettoric
26 Members,
Archives:
Membership required
Newsgroup for parents of children with Rett syndrome in the southern California area. Members of this group will share information, resources, discuss fundraising, and offer support to ...( more)
|
|
| 6 |
Rettangels
64 Members,
Archives:
Membership required
This list was created for families/friends/ caregivers to share the experiences of having a child who has been diagnosed with both or either of these two conditions (Angelman Syndrome / ...(more)
|
|
| 7 |
rettsyndromeclub
81 Members,
Archives:
Membership required
This is a Christian place place where we can gather to support one another and discuss our Rett Angels.
|
|
| 8 |
NLRettNet
< 5 Members,
Archives:
Membership required
Ouders, verzorgers en begeleiders van Rett Syndroom patienten 0
|
|
| 9 |
silantthoughts
< 5 Members,
Archives:
Membership required
this is a group that we are trying to put together for parents and care givers to get together and find answers. we all have to work together to cope with the path that rett syndrome is ...( more)
|
|
| 10 |
AngeldustSupport
< 5 Members,
Archives:
Membership required
This is a mailing list for adults who have had a Rett Angel in their lives. It will be a support group for those whose Angels have moved to a higher place. 0
|
|