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hopeunited
We are parents of children who have any one of the 43 types of neuromuscular diseases. We stand together to be a voice united, providing hope, encouragement
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musculardystrophycanadaclub
Hi! Welcome to your club. There needed to be a club in Yahoo for the MD clients in Canada to get together and chat, share, Ask questions and most of all get answers. I am a member of ...( more)
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lgmd2a
Welcome to the LGMD2A group. This group address the topic of Limb-Girdle Muscular Dystrophy Type 2A (Calpainopathy) . Although treatment of LGMD2A at present is not available, proper ...(more)
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DMDFamily
9 Members,
Archives:
Membership required
The original members of this group met each other at the PPMD Conference in Atlanta in June 2009. This group is for any parent, family member, or friend of a boy with DMD. We will share ...( more)
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heavens_special_child_for_Gavin
23 Members,
Archives:
Membership required
My son was born on 04/03/1987. He was born with a Congenital disorder called "DeMorsier' Syndrome", also known as "Septo-Optic Dysplasia". My son's name is Gavin, and I am
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willyworm1969
Not a group as such. I am a sufferer of mytonia which is a disease that affects the movement of the bodys muscles and the difficulty in regards to muscle contraction and release. My ...( more)
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muscular_dystrophy_karachi
A support group for and of individuals either having some kind of muscular dystrophy or a family member/friend with muscular dystrophy or an interest in muscular dystrophy
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duchenne-ireland
15 Members,
Archives:
Membership required
This group is dedicated to research into therapies for Duchenne Muscular Dystrophy and best practices in care for DMD children. There will probably be an Irish slant to
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MyotonicDystrophyToronto
16 Members,
Archives:
Moderators only
The Myotonic Dystrophy Toronto support group was established in November 2006 to connect patients and their families in the Greater Toronto and surrounding
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FSH_Friends
192 Members,
Archives:
Membership required
FSH Friends Welcome to FSH Friends. This site is intended for the use of any individuals affected by or having an interest in
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