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Chromosome Disorder Outreach, Inc. (CDO)[formerly Chromosome Deletion Outreach, Inc.] is a non-profit organization providing support & information to families affected by any rare ...(more)

The Beckwith-Wiedemann ListA support and information exchange for caregivers of and people with BWS.Supporting the efforts of the Beckwith-Wiedemann Children's Foundation www.beckwith-w ...(more)

The National Niemann-Pick Disease Foundation provides family support, educational programs, and research funding into all forms of Niemann-Pick Disease. This mailing list is provided as ...(more)

The 18p- e-mail list is to provide information and support to families affected with the chromosome syndrome 18p-. You MUST be a member in good standing of the Chromosome 18 Registry ...(more)

This Russell-Silver Syndrome list is a support/discussion list for anyone who has a child or family member with RSS or for adults with RSS. Discussions will include sharing our ...(more)

Information and Support for individuals & families affected by WAGR Syndrome. ------------------------------------------------------- Confidentiality Notice: This e-mail discussion ...(more)

Keywords:Smith-Magenis Syndrome , sms, disorders. The SMS Mailing list is designed to promote the exchange of information and communication about Smith-Magenis syndrome among parents, ...(more)

This group was designed for parents and other family members of adolescents, teens, and adults who have a female family member with trisomy X or a related condition, as well as the ...(more)

Chromosome Disorder Outreach, Inc. (CDO) is a non-profit organization providing support & information to families affected by any rare chromosome disorder. PLEASE REGISTER FIRST AT ...(more)