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Keywords:Smith-Magenis Syndrome , sms, disorders. The SMS Mailing list is designed to promote the exchange of information and communication about Smith-Magenis syndrome among parents, ...(more)

This Russell-Silver Syndrome list is a support/discussion list for anyone who has a child or family member with RSS or for adults with RSS. Discussions will include sharing our ...(more)

This is a forum for all areas concerning hereditary hemochromatosis/iron overload. No spamming or unrelated advertising please! Offensive or insulting remarks will not be tolerated and ...(more)

Joubert syndrome is a rare, genetic disorder that affects the area of the brain that controls balance and coordination. The disorder is characterized by agenesis (absence) or hypoplasia ...(more)

This support group is for people who are suffering from long QT or know of someone who is. Topics include, but are not limited to, genetic testing, testing for long QT, symptoms, ...(more)

An educational discussion group for people with NPS or people dealing with friends and family who have NPS. It is a safe place where we can go to openly tell our NPS stories, voice our ...(more)

We would love to have you join us in our Families HHelping Families Circle! [FHHF] The FHHF is an online support group, created & supported by the American Hemochromatosis ...(more)

Thank you all for being a part of our Fragile X Syndrome support group. As you have probably heard by now, a bunch of your fellow members are over at www.Careplace.com trying out our ...(more)

Support for Aicardi families. This group is for families to discuss information concerning their children with Aicardi syndrome.