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Browse Groups about Genetic Disorders

Top > Health Wellness > Support > Diseases and Conditions > Genetic Disorders

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1 vcfsfamilysupport
1123 Members, Archives: Membership required
Evan Williams DOB 3/18/1998 Born in Philadelphia, currently lives in Bethlehem PA. Evan is now in 6th grade. He loves gymnastics, basketball, and music. Evan plays the drums and was at ...(more)
2 chromosomedisorderoutreach
1437 Members, Archives: Membership required
Chromosome Disorder Outreach, Inc. (CDO)[formerly Chromosome Deletion Outreach, Inc.] is a non-profit organization providing support & information to families affected by any rare ...(more)
3 beckwith-wiedemann
1155 Members, Archives: Membership required
The Beckwith-Wiedemann ListA support and information exchange for caregivers of and people with BWS.Supporting the efforts of the Beckwith-Wiedemann Children's Foundation www.beckwith-w ...(more)
4 nnpdf
288 Members, Archives: Membership required
The National Niemann-Pick Disease Foundation provides family support, educational programs, and research funding into all forms of Niemann-Pick Disease. This mailing list is provided as ...(more)
 
5 18p-
112 Members, Archives: Membership required
The 18p- e-mail list is to provide information and support to families affected with the chromosome syndrome 18p-. You MUST be a member in good standing of the Chromosome 18 Registry ...(more)
 
6 RSS-Support
898 Members, Archives: Membership required
This Russell-Silver Syndrome list is a support/discussion list for anyone who has a child or family member with RSS or for adults with RSS. Discussions will include sharing our ...(more)
7 WAGR
179 Members, Archives: Membership required
Information and Support for individuals & families affected by WAGR Syndrome. ------------------------------------------------------- Confidentiality Notice: This e-mail discussion ...(more)
8 sms-list
852 Members, Archives: Membership required
Keywords:Smith-Magenis Syndrome , sms, disorders. The SMS Mailing list is designed to promote the exchange of information and communication about Smith-Magenis syndrome among parents, ...(more)
 
9 trisomyx
148 Members, Archives: Membership required
This group was designed for parents and other family members of adolescents, teens, and adults who have a female family member with trisomy X or a related condition, as well as the ...(more)
 
10 chromosomedeletionoutreach
875 Members, Archives: Membership required
Chromosome Disorder Outreach, Inc. (CDO) is a non-profit organization providing support & information to families affected by any rare chromosome disorder. PLEASE REGISTER FIRST AT ...(more)
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