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An international community forum dedicated to sharing support and information regarding Beckwith-Wiedemann Syndrome (BWS). Members include individuals with BWS, as

Welcome to VCFS DiGeorge Family Support! Sonia is 3 1/2 years old and was born with DiGeorge Syndrome. She was diagnosed soon after birth based on signs of calcium

This Russell-Silver Syndrome list is a support/discussion list for anyone who has a child or family member with RSS or for adults with RSS. Discussions will include sharing our

This support group is for people who are suffering from long QT or know of someone who is. Topics include, but are not limited to, genetic testing

Chromosome Disorder Outreach, Inc. (CDO)is a non-profit organization providing emotional support & detailed information to families caring for a loved one

Keywords:Smith-Magenis Syndrome , sms, disorders. The SMS Mailing list is designed to promote the exchange of information and communication about Smith-Magenis syndrome among

This is a semi-moderated group for people with EDS (Ehlers Danlos syndrome) and folks interested in learning more about it. Topics

We would love to have you join us in our Families HHelping Families Circle! [FHHF] The FHHF is an online support group, created & supported by the American Hemochromatosis

An international democratic group promoting the exchange of Beckwith-Wiedemann Syndrome (BWS) related information and support, as well as facilitating a lively discussion between group