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Group Listings
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CRNSupportGroup
285 Members,
Archives:
Membership required
Welcome to the Cystinosis Research Network (CRN) Support Group. This is a forum to share questions, concerns, and experiences relating to cystinosis. More than 200 families affected by ...( more)
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CRNCystinosisNews
102 Members,
Archives:
Membership required
Cystinosis News and Announcements is a post only list. The Cystinosis Research Network will post newsletters, research questionnaires, announcements of upcoming events, important ...( more)
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cystinosisfamilysupportgroup
The Cystinosis Foundation Family Support Group has been moved to the Arborwood Forums. The address is: http://www.arborwood.com/forums/cystinosisfoundationfamil/ Come Join us there.
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Cystinosisteensupport
23 Members,
Archives:
Membership required
Connect with other teenagers with cystinosis who are dealing with similar issues. The posts include questions, concerns, ideas and supportive sharing. This is an e-mail list which ...( more)
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Cystinosissupportgroup
Seeking info. on living with Cystinosis
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| 6 |
cystinosis
abc
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