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Group that allows free discussion about Endoscopic procedure for parents of children that have craniosynostosis. Frank discussion of all pros and cons as well as tips for surviving the ...(more)

Bicoronal and Unicoronal Craniosynostosis is a condition that occurs more rarely than other CS. Most children with this type of CS tend to resemble eachother and most parents can relate ...(more)

Craniosynostosis

This is a group to just share your feelings,any questions or just to chat about how craniosynostosis has touched your life.

Craniosynostosis is a very divestating word to hear, their are many aspects of it. The initial shock of finding out your child has it, the discussion of major surgery, and then the ...(more)

Come together and chat about our children and craniosynostosis and other craniofacial abnormalities. This is not a a place for medical diagnosis but support to help with craniosynostosi ...(more)

families that have had craniosynostosi in there life

In 1999, the national non-profit organization Craniosynostosis And Parent Support, Inc. was established by a mother whose child had Craniosynostosis to offer support and information to ...(more)

Do you have craniosynostosis or have a loved one with it? If so, this is the place to meet new friends who understand the issues and challenges you face daily. Carpenter, Apert, or ...(more)