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Browse Groups about Craniosynostosis

Top > Health Wellness > Support > Diseases and Conditions > Craniosynostosis

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Group Listings

1 childrenwithcraniosynostosis
338 Members, Archives: Membership required
~~VISIT ***www.CAPPSkids.org*** for more information and additional support ( www.cappskids.org/board/ )!! ~~Has your child had craniosynostosis or recently been diagnosed? Is your ...(more)
 
2 strongmom23
34 Members, Archives: Membership required
families that have had craniosynostosi in there life
 
3 craniosynostosis_endo
177 Members, Archives: Membership required
Group that allows free discussion about Endoscopic procedure for parents of children that have craniosynostosis. Frank discussion of all pros and cons as well as tips for surviving the ...(more)
 
4 beyondcranio
45 Members, Archives: Membership required
Craniosynostosis is a very divestating word to hear, their are many aspects of it. The initial shock of finding out your child has it, the discussion of major surgery, and then the ...(more)
5 craniosynostosis
82 Members, Archives: Public
Craniosynostosis
 
6 ahavenforparents
18 Members, Archives: Membership required
This group is for parents who have children with Craniosynostosis and or any syndrome related to it. It is a long, hard road that we face but helping each other and having other people ...(more)
7 CAPPSKIDS
16 Members, Archives: Membership required
In 1999, the national non-profit organization Craniosynostosis And Parent Support, Inc. was established by a mother whose child had Craniosynostosis to offer support and information to ...(more)
8 Steviesmommy
41 Members, Archives: Membership required
This is a group to just share your feelings,any questions or just to chat about how craniosynostosis has touched your life.
 
9 Neuro_Patology
5 Members, Archives: Moderators only
Consults about diagnose and treatment of Neurologic Patology
 
10 craniosynostosis-support
5 Members, Archives: Membership required
Hi and welcome to Craniosynostosis Support. The groups aim is to bring together affected individuals, their families, friends and associates for email support, discussion and research. ...(more)
 
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