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ccakids
227 Members,
Archives:
Membership required
CCA is the premier national organization addressing the medical, financial, emotional, psychosocial and educational issues related to craniofacial conditions. Our mission: empowering ...( more)
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pierrerobin
766 Members,
Archives:
Membership required
Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with PRS. The purpose of our group is to share experiences with each other to ...( more)
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jawdistraction
340 Members,
Archives:
Membership required
Welcome to the Jaw Distraction/ Craniofacial Surgery Discussion Group! This group is for all whose lives have been affected by a craniofacial difference or anyone who has an interest in ...(more)
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cleftclub
435 Members,
Archives:
Membership required
CleftClub.com is for providing information and support for those dealing with cleft lip and/or palate, whether you were born with it, are parents of a cleft child, or are a relative or ...( more)
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crouzons
227 Members,
Archives:
Membership required
Welcome to the Crouzon Support Network, an online support forum for individuals and families facing the challenges related to living with Crouzon Syndrome and other craniofacial ...( more)
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cleftchat
520 Members,
Archives:
Membership required
For parents of children born with cleft lip and/or cleft palate. Our list is open to all to freely express their feelings, get support and to learn in a positive environment. We have a ...( more)
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FND-CFND
47 Members,
Archives:
Membership required
Frontonasal Dysplasia, or FND, is a craniofacial condition that affects the way the eyes and nose grow together. It occurs in the first few weeks of pregnancy and can be the result of a ...( more)
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morethanonecleft
A support group for parents of more than one cleft affected child. Also known as multiplex cleft lip and palate families.
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childrenwithfacialdeformities
112 Members,
Archives:
Membership required
I wanted to begin a message site for children. My son has microtia, a deformity of the ear, and I have had a hard time finding chat groups for children with facial deformities. Please ...( more)
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theteencleftclub
This club is I guess, intended for but not limited to teens with a cleft palate and/or lip. Anyone is welcomed to join and talk about anything... I am 16, with a cleft lip and palate, ...( more)
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