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pierrerobin
776 Members,
Archives:
Membership required
Pierre Robin Network is comprised of parents, caregivers, family members, medical professionals and adults with PRS. The purpose of our group is to share experiences with...
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cleftchat
671 Members,
Archives:
Membership required
For parents of children born with cleft lip and/or cleft palate. Our list is open to all to freely express their feelings, get support and to learn in a positive environment. We have a ...( more)
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ccakids
599 Members,
Archives:
Membership required
CCA is the premier national organization addressing the medical, financial, emotional, psychosocial and educational issues related to craniofacial conditions. Our mission: empowering ...( more)
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cleftclub
563 Members,
Archives:
Membership required
CleftClub.com is for providing information and support for those dealing with cleft lip and/or palate, whether you were born with it, are parents of a cleft child, or are a relative or ...( more)
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jawdistraction
439 Members,
Archives:
Membership required
Welcome to the Jaw Distraction/Craniofacial Surgery Discussion Group! This group is for all whose lives have been affected by a craniofacial difference or anyone who has...
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crouzons
213 Members,
Archives:
Membership required
Welcome to the Crouzon Support Network, an online support forum for individuals and families facing the challenges related to living with Crouzon Syndrome and other craniofacial...
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muenke_syndrome
37 Members,
Archives:
Membership required
I am the mother of a child with Muenke syndrome, and have had difficulty finding other families who are dealing with this as well. I am hoping by putting this group up I can meet other ...( more)
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ala-bg
10 Members,
Archives:
Membership required
This group is for the Association of children with facial abnormalities and their parents – ALA. A group for families and individuals dealing with issues surrounding cleft lip and/or ...( more)
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childrenwithfacialdeformities
144 Members,
Archives:
Membership required
I wanted to begin a message site for children. My son has microtia, a deformity of the ear, and I have had a hard time finding chat groups for children with facial deformities. Please ...( more)
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theteencleftclub
This club is I guess, intended for but not limited to teens with a cleft palate and/or lip. Anyone is welcomed to join and talk about anything... I am 16, with a cleft lip and palate, ...( more)
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