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EBsimplex
171 Members,
Archives:
Membership required
The term 'Epidermolysis Bullosa' encompasses a group of blistering skin diseases for which there is no cure and few treatment options. This list is intended to provide an open forum for ...( more)
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rosacea-diet-users-support-group
Check out the new Rosaceans Blog Rosacea 101: Includes the Rosacea Diet | Free Preview of the Rosacea Diet If you wish to join, purchase of the Rosacea Diet book is optional to join ...( more)
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rosaceans
Check out the new i.rosaceans. com blog Rosaceans are rosacea sufferers! | Related Link: rosaceans.com Rosacea Treatments | Rosacea 101 | Buy Rosacea 101 This yahoo group allows members ...(more)
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ebdatabase
135 Members,
Archives:
Membership required
Epidermolysis Bullosa is a rare condition, and Drs are not always free to give out information about other parents or patients in the area or anywhere that might help because of ...( more)
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EBzone
351 Members,
Archives:
Membership required
Welcome to the EBzone! Formerly known as 'EBworld', EBzone is the largest and oldest mailing list for the EB community! This list is made to bring Epidermolysis Bullosa parents, ...( more)
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TalkHHD
433 Members,
Archives:
Membership required
This group is dedicated to the mutual support and encouragement of those suffering with Hailey Hailey Disease (Chronic Benign Familial Pemphigus) and their friends and families. This ...( more)
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ebpep
63 Members,
Archives:
Membership required
This group is generally for parents who do not have epidermolysis bullosa but who do have a child or children with this rare skin disorder. EB free parents who have children with this ...( more)
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Argyria
26 Members,
Archives:
Membership required
This group was created to support those of us who are dealing with Argyria. This condition, which causes the skin to turn blue or bluish gray, is caused by the ingestion of silver, ...( more)
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ebsimplex2
37 Members,
Archives:
Membership required
This group is for patients and families affected by the Simplex form of Epidermolysis Bullosa. This is the form of EB which is less severe than others but has its own unique physical, ...( more)
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HaileyHaileyDisease
46 Members,
Archives:
Membership required
This group is dedicated to and in the assistance, education and support, by the dissemination of information using all available media means, of anyone and everyone who suffers from ...( more)
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