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MD-List
Support and discussion of Muscular Dystrophy. Please come join in the discussion! You might feel more comfortable joining and "sitting back and watching" for a few days, just to see how ...( more)
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centralcoredisease
105 Members,
Archives:
Membership required
A place for those affected with CCD to come and share your experiences. A place for those affected with CCD to find support. A place for those with loved ones affected with CCD to come ...( more)
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fshsociety
The FSH Society, Incorporated, 501(c)(3) non-profit volunteer health organization for facioscapulohumeral muscular dystrophy (FSHD) issues. The Society assists individuals, physicians, ...( more)
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opmd
259 Members,
Archives:
Membership required
Welcome to the OPMD (Oculopharyngeal Muscular Dystrophy) Support Group. We welcome those affected with OPMD and their family and friends. Our OPMD members offer their support, personal ...( more)
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MyotonicDystrophy2
122 Members,
Archives:
Membership required
International web-based SUPPORT/ADVOCACY GROUP for patients diagnosed with Myotonic Dystrophy type 2 (DM2) or PROMM. Access the largest online DM2 patient resource base to become better ...( more)
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dmdsupport
339 Members,
Archives:
Membership required
The DMDSupport List is an email list for parents, families, individuals facing the challenge of Duchenne Muscular Dystrophy (DMD).
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dysferlin
Dysferlin deficiency causes two forms of muscular dystrophy: Miyoshi distal myopathy and Limb-Girdle Muscular dystrophy type 2B. The dysferlin gene and protein were discovered in 1998; ...( more)
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dmdpioneers
Welcome to DMD Pioneers Mailing List! DMD Pioneers is an international group for anyone with Duchenne Muscular Dystrophy (DMD) who has beaten the odds. We are in effect Pioneers, in ...( more)
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ChristiansWithDuchenneMuscularDystrophy
121 Members,
Archives:
Membership required
I am a 40-Year-Old gentleman with Duchenne Muscular Dystrophy and a Born-Again, Spirit-Filled Christian. This group is to be a place of safety for Christians suffering with DMD and ...( more)
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MyotonicDystrophy3
15 Members,
Archives:
Membership required
International researchers currently suspect additional forms of myotonic dystrophy (DM3 & DM4) may be present in chromosome 16 and 21 and that subsequent forms (DMX) of myotonic ...( more)
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